tag:blogger.com,1999:blog-23896405.post114351980097888046..comments2023-10-25T06:19:48.161-07:00Comments on Connor's Adventurous Journey: Monday Update.....Little Bughttp://www.blogger.com/profile/08380708582018740061noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-23896405.post-1143598328757872642006-03-28T18:12:00.000-08:002006-03-28T18:12:00.000-08:00Have been reading with interest your blog. You s...Have been reading with interest your blog. You should some day think about writing a book to help other parents of special children. Want you to know that Connor is now on a prayer chain in Kennewick, WA. and also in the National Shrine of St Jude in Chicago. Your blog is the first thing I look at in the morning and the last one at night. Please know that you are all in our prayers.<BR/>Pat and John WelshAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143589123810513072006-03-28T15:38:00.000-08:002006-03-28T15:38:00.000-08:00Randy, Lori, & Connor...Everybody else has already...Randy, Lori, & Connor...<BR/><BR/>Everybody else has already said everything. Just please know that we are continuing to hold all of you up in our prayers. God will bring you through this!<BR/><BR/>Barry & Heidi HenningerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143579557953910332006-03-28T12:59:00.000-08:002006-03-28T12:59:00.000-08:00I have been quietly reading your blog for several ...I have been quietly reading your blog for several days now. While my little one did not have cardiac issues, she has had massive respiratory issues. She spent about three months of the first year of her life in the hospital. The highs and lows of both the good and bad news can be a bit overwhelming at times. It often felt like with every bit of good news, two bits of bad followed. Just when you think that you have overcome one thing, something else creeps up. As he grows you will notice that the joys will begin to outweigh the challenges. <BR/><BR/>I can completely understand the weight gain issue, and the using of all available calories just to breath. She was on a 32 cal per ounce diet in the beginning and remained on 27 calories per ounce the entire first year. She had an ng tube, oxygen, you name it we have been through it in terms of lungs. My little fighter has tracheal-bronchial-laryngeal-malacia, subglottic stenosis, chronic asthma, and GERD. Basically what this means for her is that everything from the back of her throat to the bottom of her lungs is compromised by the most simple invasions such as upper respiratory infection-and often times aspiration. When it is difficult to breath it makes everything else so much harder-I cannot imagine compounding this with a heart condition. <BR/><BR/>We do still have quite a bit of medication and some standard hospital equipment in our home, but we have come such a long way from those days as a newborn in the hospital. I never anticipated that my little girl would overcome such major health difficulties so well. <BR/><BR/>Many never expected to see her meeting typical milestones on time-but she surprised everyone. My Elainah is an amazing little girl, and she is quite active. She has been a little fighter since the day she was born, and it is obvious in all that she does. <BR/><BR/>It so wonderful to see all of your emotional support, and it is easy to see mom, dad, and Connor are loved and all very strong. I believe that once you get beyond the current hurdles you are facing things will be brighter again. From what I have read, you are in a fine hospital with many doctors concerned about your little bug’s success. <BR/><BR/>One day you will look back upon this difficult time as a memory, and you will be quite impressed with how well everyone stepped up to the plate and managed the times when things were uncertain. Most of all you will be so proud of your son… and these times will pale in comparison to the joy you share daily with your little bug. <BR/><BR/>Your family is my daily thoughts and prayers. <BR/><BR/>Rebecca P. in Woodhaven, MI.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143567280440106362006-03-28T09:34:00.000-08:002006-03-28T09:34:00.000-08:00Hello Randy and Lori, How exciting to hear the rep...Hello Randy and Lori, <BR/>How exciting to hear the report about Connor doing much better. The story of the smile make my eyes leak as I imagined Randy holding him and seeing the first smile. No doubt that meant more than anything on this earth to mom and dad after all that you have gone through. We sure are praying for you and love you much. May God's healing power continue to flow through Connor until he is up and out of the hospital. <BR/>Blessings upon you, <BR/>Dan and Diane LarsonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143561133075877932006-03-28T07:52:00.000-08:002006-03-28T07:52:00.000-08:00Oh Lori a couple of times one of your favorite ver...Oh Lori a couple of times one of your favorite verses has come to my mind and I forgot to write it to you. God has a way to remind us so wanted to add alittle PS <BR/>Ephesians 3:20-21<BR/>Now to Him Who, by (in consequence of) the [action of His] power that is at work within us, is able to [carry out His purpose and] do SUPERABUNDANTLY,far over and above all that we [dare] ask or think infinitely beyound our highest prayers, desires, thoughts, hopes or dreams...To God be the glory in the church and in Christ Jesus throughout all generations, for ever and ever. Amen (so be it)<BR/>That's from the amplified version we just pray that God's word brings life into every moment of today. <BR/>Before saying goodbye give Connor big loves and big loves for you and Randy too.<BR/><BR/>Love always, dad and mom XOXOXOXOXOAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143555560441485602006-03-28T06:19:00.000-08:002006-03-28T06:19:00.000-08:00Good Morning LoriWe are praying so much for you an...Good Morning Lori<BR/><BR/>We are praying so much for you and Randy and Connor. Today we pray that the doctor's and all the specialist's will be so directed by the Lord and that He will show them what to do. Oh precious Connor we pray that Jesus just gives you so much strength when the doctor's do all their examing and you keep on fighting in your little body.<BR/><BR/>Lori know that there are so many people praying and you are not alone in Connor's room when you meet with all the doctor's their is that great cloud of witnesses there to encourage you. May the Lord be with Randy too as he is at the base today and his thoughts too are in Connor's room. These are the time's that it's so hard for parent's not to be right beside you you may not see us but we'er there.<BR/><BR/>Give Connor a big love from grandpa and grandma and maybe a butterfly kiss too. Pretty soon he'll be giving us all butterfly kisses with his long eyelashes :)<BR/><BR/>In my Bible I have alittle prayer written on a piece of paper written by Ruth Graham it says:<BR/>Lord, still my anxious heart to calm delight for the Great Shepherd watches with me over my flock by night.<BR/>Remember too the verse in Ps. 5:3 <BR/>In the morning, O Lord, Thou wilt hear my voice; in the morning I will order my prayer to Thee and eagerly watch. Oh Lori the Lord is right there with you and He knows every detail and He loves you so much and He is holding Connor and you and Randy.<BR/>We'll talk to you later today ok love to you a whole bunch.<BR/>Love dad and mom XOXOXOXOXOAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143534543838626072006-03-28T00:29:00.000-08:002006-03-28T00:29:00.000-08:00LoriEven though some of the news you got today was...Lori<BR/>Even though some of the news you got today was not the most encouraging..........remember all the words and promises that you have received from the Lord in regards to Connor. It must be really hard at times to hold your head up high and to have all the strength that you need, but this too will pass. I am sooo glad to hear that you went and did a few things for yourself today, it must have been tough but please do not feel guilt because by taking care of you is one of the best gifts you can give Connor right now. <BR/>Take care and we are praying!<BR/>Love<BR/>TammyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143528940125319882006-03-27T22:55:00.000-08:002006-03-27T22:55:00.000-08:00Lori, Every morning and every night I come in here...Lori, Every morning and every night I come in here and do a check up on you all. Lori, I see an open field, the colors are so beautiful, brilliant green grass all over and the flowers are so plentiful, down the pth away is a long but small rippling river, with a arched bridge going over it, on the other side, is a six foot log, with a soft patch of grass nest to it, the air smells like sweet honey, the temperature is warm enough to not have to wear a coat, yet crisp enough to be refreshing. This is my quiet place I go to in those times I need emotional rest and strength from the Lord, I am loaning it to you Dear Friend. Sit down in the grass Lori, lean against that log, close your eyes, and breathe deeply, and slowly in through your nose and out through your mouth, several times, imagine you are laying your head on our eternal daddies lap, and He is gently gliding His Hand over your hair, and just saying Shhh sweet Daughter, shhh, just rest in me, I will be your strength, I will be your comfort, I will fill your every need, I am your provider, I am Jehovah Jireh. My Grace is suffiecient for thee. This can be your retreat Lori, as well. I love you sweet sister. DarinaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143525592470609432006-03-27T21:59:00.000-08:002006-03-27T21:59:00.000-08:00You don't know me Lori but I ran across your blog ...You don't know me Lori but I ran across your blog a few weeks ago. I've been checking up on and praying for Connor nightly. Know that even those you don't know are praying for you and hoping with you for a speedy recovery. I can't even imagine how hard this is for the two of you. Imagine how much harder it'd be without the eternal hope of Jesus. <BR/><BR/>Bianca & JeremyBiancahttps://www.blogger.com/profile/15669145891230739857noreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143524563507478212006-03-27T21:42:00.000-08:002006-03-27T21:42:00.000-08:00Lori & Randy:We just wanted you to know that you a...Lori & Randy:<BR/><BR/>We just wanted you to know that you and little Connor are in our prayers! What a little darling he is! <BR/><BR/>With love,<BR/><BR/>The Carlson clan (Rollin & Helen, Rob & Lisa, et al.)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-23896405.post-1143523809703058062006-03-27T21:30:00.000-08:002006-03-27T21:30:00.000-08:00Oh Lori,I hear your frustration and understandably...Oh Lori,<BR/>I hear your frustration and understandably so. I'm glad you were able to get away for awhile today and catch a breath of fresh air. We are praying for encouraging reports tommorrow and for weight gain for your "little bug" Wow! he is a fighter! Jesus, renew Lori & Randy's strength, Jesus fill that hospital room with your prescence that everyone who walks in the room will know that you are there with them and will sense your prescence, give Connor and his Mommy & Daddy peaceful rest tonight.<BR/>we love you three!<BR/>Love, SueAnonymousnoreply@blogger.com