Saturday, March 11, 2006

First Post Information

Hi sweet family and friends,

We are learning so much about "life" from our precious Connor. Who would have thought that he would have been the one to prompt us to figure out what a blog site was!!! Thanks to our new friends John & Susan and baby Brent we now have a way to keep all of you informed on Connor's progress and adventures. This is just the first posting to get us started and we will add much more detail (photos, etc..) when daddy wakes up from his nap!!!

Today started at 12:34am when the phone rang in our sleeping room (more to follow about the room) and the nurse said we should come to the room because Connor was having a tough time breathing. When we arrived he was, once again, struggling for breath and his heart rate and respiration rate were dangerously high. They proceeded to put him back on the c-pap machine which is a pressurized oxygen apperatice to help him breathe and transfer oxygen properly. Once he settled down, with the help of Adavan, an anti-anxiety drug, he slept through the night. He has remained on the machine throughout the day with only small bouts of fussiness.

After consulting with the doctors this morning we are fairly confident that Connor will be going in for surgery sometime early next week (hopefully) for a Nissan procedure and a GJ Feeding tube. I will write more explanation on this shortly, but for now just the facts. XRays still show what they are calling Aspiration Pnemonia and he is being treated with many antibiotics. They have stopped his feeds through the NJ feeding tube because they say it is dangerous for him to aspirate any more into his lungs. They are nourishing him with IV nutrition at the moment and we don't have a time frame for getting him back on mamma's milk. Please pray that this can happen soon.

I will give more info soon, but for the time being I just wanted to get this blog started up so we can share Connor's info daily with all of you.

Thanks for your love and prayer and support,
Randy, Lori & Connor

19 comments:

Anonymous said...

I love Connor!

Randy said...

Good morning Honey, Connor is doing fine

Love Randy

Auntie Heather said...

Dearest Lori, Randy and Connor:

We are praying for each of you and want you to know that so many people are too.

Lori and Randy, please find time to rest and eat so that you can remain strong for Connor.

Connor, we are praying for the Lord's strength for you. We know that He has a great plan for you.

Sending our love and hugs to you.

Love, Auntie Heather, Olivia and Bergen Luke

Auntie Heather #2 said...

I love you guys! Love Lauren B.
Hi Uncle Randy & Auntie Lori. I want to tell you that I really want to see you all. You are the greatest in the world. I'm praying for Connor. Bye. Brennan B.

Hi guys! We love you so and are praying for you constantly. We are believing God for ABSOLUTE miracles. Randy and Lori, we're praying for your strength, energy and peace. Connor, you keep up the good work! :) LOVE YOU TONS! Uncle Dan and Auntie Heather

Anonymous said...

Hi Lori,

This is Jennie Poetzl. I just got off the phone with Susan Emery, and she mentioned meeting you guys. I love that, in the midst of trials, God gives us other believers with whom to connect and support.
You have always been an amazing person to me, and reading your blog, it is evident that God is using you through this in mighty ways. Nate and my prayers are with you. We hope to get down to the hospital soon to see you and to visit the Emery's.
My, a lot has happened on this crazy road of life since I last saw you, Lori. I cherish the time we had in Eugene so long ago, and pray that we can connect soon.
Love to you all,
Jennie and Nate

Anonymous said...

Lori, Randy , and Connor,

Just a note to let you know that you are still in our prayers. I was able to get out and go to church this am, and pass on your information to our prayer chain. Please know that you have the prayers of our church mebers across the U.S with you.

Please feel free to contact me any time you need anything. Although we are far away, we hope that you can bennefit from our prayers and experience with Christopher. Any time we can help another family cut down on the amount of time it takes to get their precious one taken care of, we are happy to help.

Take care! God Bless!

Stephanie, Chris, & Christopher
from Illinois

Anonymous said...

Randy, Lori & Connor,

So good to see you guy's today! We Love you guys and will contintue to pray for Connor & for your strentgh...Connor looked so good today... It was nice to see him without the c-pap on his adorable face!. He is so cute - we love him lot's and will be back down to visit soon. Love, Ted, Teresa, Chloe, Emma & Jake!

Emery six said...

Hi Randy and Lori. We are excited to see you have your blog up and going. We have enjoyed meeting you both at the hospital. You are such a wonderful couple. We are at home now. I may come back tonight. Susan is staying home with our other kids tonight. We will ask people on our blog to pray for little Connor and we will pray him.

John and Susan Emery

derek r said...

Hi how are you doing. THank you for dinner. I hope connor gets better. I also hope you have good time at the hospital. Love derek.

Anonymous said...

Randy and Lori;
Our prayers are with you all. So glad you are now together! Am praying Isaiah 41:10 for you both - and of course for Connor's healing.

Love, Greg and Gayle Crabtree

Anonymous said...

Dear Randy and Lori,

What a great idea! We sit here in California waiting on updates to each event and are praying and hoping right along with you. What a difficult circumstance for two great parents. Little Conner is a very lucky little boy to have parents like you. We are praying for strength and an unexplainable peace in your heart, and healing for little Connor. We love you all...

Steve and Laruie O'Brien

Auntie Maureen said...

Dear Connor
Boy I hope you have had a good day. I love you and I sure do miss you. I need to go visit you real soon. How are your mom and dad doing? Maybe we'll call them and check up on them. You know your daddy...he likes to talk about dog training with your uncle Larry. Just between you and me, your mommy and I find it completely boring but we have to smile and nod our head in agreement with them so we look interested. We bought fish and put them in cousin Kyle's pond today. They look so nice in there. When you get out of there, you will have to have your mommy and daddy drive you over here to see it. I'm sure you'll love it. Every little boy loves water. Well you rest up and get better so you can come to my house and cuddle with me. I love you Connor and I will see you soon.
Love you forever,
Auntie Maureen

Anonymous said...

Dear,Randy,Lori and Baby Connor I miss you so so much! I pray for you everyday! Can't wait to hold you and Kiss you Connor! hope to see you soon. I LOVE YOU
Love Erica

Anonymous said...

Hi Randy Lori and Connor
I love you Baby connor so much.I Pray that you feel better! I love you to Uncle Randy and Auntie Lori!
Love Haley

Anonymous said...

Hello Randy,Lori and Connor
i hope Baby connor gets well soon.I love you So much and hope to seel you soon!!
Love Carly

Anonymous said...

Hello Lori, Randy and Connor,

This is Wendy Doman (Heather M. friend of many years). She has been updating me on what is happening w/ little Connor, and I have put him on our prayer chain at church and thru my previous MOPS group gals. My prayers for strength and healing go out to you and the family during this time. You are so strong and I believe that can only come from GOD in a time like this.

Wendy Doman

Anonymous said...

hey randy this is tyler happy birthday love u guys

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Jennifer said...

I just wanted to let you know that your story has given me a brighter look on DS. My nephew Conner was born 9.23.07 and my sister is quite young and I have the slightes idea as to what she is facing. I have done much research so I can be able to help her, and then I found your blog, thank you for posting and walking through you daily life with DS, it has help a lot. Jennifer