Wednesday, November 04, 2009
I have to say, we are exhausted and are in need of sleep. You never get a good nights rest in the hospital, and last night was no exception. Please agree with us in prayer that Connor's pain would be minimal. He is such a trooper!!!! He is taking Tylenol every 4 hours and rotating Tylenol w/Codine every other dose. Since we have been home he has been playing so good with little agitation. We thank the Lord that he is doing much better than we anticipated and we trust that this will continue!!!
I will update again in a couple of days and let you all know how he is recovering.
We are all hoping for a good night of rest tonight!!!!
Tuesday, November 03, 2009
Before they took him in to the operating room, one of the nurses came back and told us that our prayers must really have been answered for this surgery to take place. There were 8 surgeries on hold and Connor was one of two that actually happened. Praise the Lord for that!!! We don't know why Connor was chosen, but we are thankful that he was and that we didn't have to turn around and go home.
About 2:30pm they took Connor from us and headed down that long, ominous hallway to the operating room. We, of course, had prepared Connor best we could to make that long walk without us. We assured him with our prayers as well as the little white treasure box we always send with him into the Operating Room. It contains 2 silver hearts that represent Daddy & Mommy's hearts going with him into the unknown and it also contains a small coin with his name on it and a picture of a Guardian Angel that promises to always be at his side. We have sent that box with him on far too many occassions, but it somehow gives us comfort to send it with him. Before he left us, I once again told Connor the story of his little guardian angel, Herman (that many of you remember that have read the blog from the very beginning). I reminded him that Herman would be there waiting for him when he entered the big white room and he would be doing loopty loops in the corners to make him giggle. We also told him that Herman would sing his favorite songs and whisper in his ears how much we loved him, but that Jesus always loves him more. It is always fun to remind Connor how much he is loved, even if it is in a silly manner.
After Connor was on his way, we headed down to the cafeteria to get a bowl of soup. We sat in our, all too familiar spot, in front of the large fish tank. We remembered vividly all the moments we had sat at that table in tears pleading with the Lord to spare our little boys life. Today, was different story. We thanked the Lord for His faithfulness to Connor over these 3 1/2 years and thanked him for the many miracles that He has preformed for Connor. We asked the Lord to spare him, this time, from pain. Our prayer is that he would have minimal pain as he recovers and that this surgery would accomplish what we sincerely hope it will......better health & an increased immune system for Connor.
Well, it wasn't more than about an hour and we received the page. We called up and sure enough, they were done with the surgery and the surgeon was waiting to talk with us. We knew that everything must have been a great success since it was such a short surgery. There was a spring in our step as we headed down the long hallways here at the hospital. When Dr. Sie greeted us she had a big smile on her face and said that Connor did GREAT. His tonsils were removed as they were the size of unshelled almonds on each side. Comparitively speaking, that is huge compared to the size of Connor's throat (well, to anyone's throat for that matter!). His adenoids looked very good and were quite small so she left those in and she felt that was the best decision. We trust her fully with Connor, so we are grateful that he didn't have to have them out as well. His airway was in perfect condition and looked completely normal and his ear tubes we in proper size and location for his growth over the next year. All things considered, this was a great outcome. Since the tonsils were the only thing to be surgically removed, his recovery should not be as difficult as we anticipated. It will still be rough, but probably only a couple of weeks.
The surgeon helped us better understand that Connor may actually have a better time of recovery not eating by mouth than he would if he were eating. We were surprised, because we were sure this would be the other way around. Actually, with the g-tube, we can make sure that he has proper nutrition and hydration without having to activate the throat muscles, which will be better on Connor for the long run of the recovery. Praise the Lord for answered prayer on this issue.
We are with Connor in the ICU right now and he is struggling to keep his oxygen levels up on his own and is requiring oxygen to supplement his breathing!!! Please pray that he would be able to do this on his own so that we can go home tomorrow.
We appreciate all of your prayers and I will update again later.
Monday, November 02, 2009
Randy is home so he will be with us at the hospital which I am very grateful for. My mom will be here with the little munchkins and we anticipate a couple of days in the ICU and then hopefully we will be able to bring him home.
Time to get some sleep before the big day tomorrow. We covet your faithful prayers and encouragement.
Sunday, September 27, 2009
Connor did start preschool and made it 3 days until he came down with a horrible cough, runny nose, fever and flu symptoms. Within a day, Alex and Mackenzie came down with it too. Randy came home and he got sick within a day. Yikes!!!! Mackenzie had the croup, Alex had a fever and really bad cold symptoms and I ended up in the ER at Children's Hospital with Connor last Sunday. They diagnosed him with croup, sinus infection and asthma. He is now on an inhaler for some breathing issues.
This past week was spent trying desperately to get everyone feeling better, but it has not been easy. Mackenzie is finally feeling somewhat better after 10 days, Alex is still miserable with an awful cold (on top of teething) and Connor is doing much better, but still coughs with a bit of a runny nose. Randy went back to work today, reluctantly, but felt that he had used enough sick days. There have been lots of sleepless nights around here and I just have to pray that things are going to look up soon.
I'm so torn about sending Connor back to school as we must keep him healthy for his upcoming surgery. I think I am just going to play it by ear for a while and see what my heart tells me to do. We did start Connor on some, much needed, nutritional supplements and a vitamin regime that we really pray will do the trick to build him up in his immune system and allow him to survive the world around him & the germs that are inevitable. So far, we have seen an improvement in his mood and sleep.....let's hope that these results continue to improve his overall health.
We know that many of you are also battling sickness, swine flu and fall colds. We understand what you are going through and we will pray for all of our blogger friends to feel healthy & strong soon. Remember, good hand washing and covering our coughs as well as some simple common sense can help us all feel safer in this germ infested time where sickness seems to be very widespread. We want everyone to feel happy & healthy and we pray that sickness would stay away, so let's all do our part...I guess the Mother Hen in me is coming out....I just want all the little chicks to be well!!!!
Lovebug Hugs & Well Wishes To All!!!
Sunday, September 13, 2009
First of all, Connor. He will begin preschool at Alpac Elementary on Monday afternoon. I am hopeful that this will be the year for Connor to have a great experience at school after last year being such a devastating start. If you'll remember, he got sick in just the 4 days he was in the classroom last year. I am nervous that Connor will struggle with illness again, but we just have to give it a try. I took him to orientation on Friday of last week and it was a complete nightmare. He screamed and cried the whole time. I don't know what prompted such severe outbursts, but it was extremely hard for me and it was an unfair way for him to meet his teacher. Connor struggles in so many areas, I desperately want him to excel in school, to fit in and be accepted and be liked by others. It's really hard when he isn't where the other kids are, they look at him differently and I wonder what his education profile is going to look like. We are so committed to Connor and to his progress in a variety of areas, and education is on the top of the list. I guess that's why this is so important to me that he receives the right placement and the right place for him to try and make strides with preschool learning and social integration. We are putting our best foot forward tomorrow and praying for good results. Please pray for Connor in this area. Pray that he would feel comfortable in the classroom setting and that he would be safe from illness. Pray that the teacher and para-educators would know how to best encourage and boost his learning. Pray that he would have fun with other kids and enjoy learning new things. I know for most kids, preschool is an anticipated step toward independence and expanded opportunities, however for Connor, there are many limitations because of his delays. Call me overprotective, that's OK, but I just want the very best for him and I am worried!!! He will be in school Monday - Thursday in the afternoons from 1:00 - 3:40. I will be taking him to school because it is too much out of my comfort zone to send him on the bus when he's not walking or communicating yet. That one's going to take me a while to feel comfortable with. So, for now it will be me and the bug-a-boo off to school (with the other munchkins in toe as well) 4 days a week. Wish him well tomorrow and say your prayers for an awesome day and a great start to preschool.
OK, now on to Alex. Our little peanut is going to be ONE year old on Tuesday. It's really hard to believe that he is already approaching this huge milestone. It truly seems like yesterday that he was born...maybe that's just because I haven't shed that baby weight yet...Hee Hee. Since Randy is not going to be home, we have opted to celebrate the big #1 on the 25th with the grandparents instead of doing it on his actual birthday. He will enjoy being the center of attention with lots of love & snuggles & presents. He recently recovered from about a 10 day sickness with a yucky virus called Rotavirus. Poor little fella, lost a lot of weight and was just miserable. He's starting to eat normally again and he's beginning to fill out in his little face as well. He's cruisin' all over the place, but hasn't taken any independent steps yet. Probably within the next month he'll be walking all over the house!!! He finally has 4 teeth, that have all come in within the last 3 weeks....literally. Teething has been miserable for Alex. I hope that he can get some more so we can make better strides with eating. He really doesn't like anything he has to chew yet, because he just has those silly gums. But now that he has front teeth we are making a little bit of progress in this department. He remains a constant joy and he keeps me on my toes....he's faster than lightning!!
We enjoyed taking Mackenzie to the Puyallup Fair last Friday on opening day. She just loved the animals and the petting zoo. She has no fear when it comes to animals so she was playing with Billy Goats, bunnies, and even a little baby hen. She also loved being on Daddy's shoulders to see the giant draft horses. Wow, those things are big!! We strolled around all afternoon and she even went on her first roller coaster...Daddy accompanied her on the Tiger Coaster while Mama video taped. She did great and loved the 3 rides that she went on. In fact the next morning when she got up she kept talking about how "very fun" the fair was. The scones and corn dogs were yummy, but boy oh boy, every year they are more expensive....Whew...It was a small investment just to attend the fair for a few hours. I'm not complaining though, we had a great time!!!
That's it for the moment. I'll try to post pictures of our big week soon. Also, our thoughts and prayers go out to our California family members on the news of Uncle Ernie's entrance to Heaven. That was Randy's dad's brother and a wonderful man. We loved him dearly and we are praying for Aunt Shirley and the rest of the family as they find peace in this difficult time.
All our Lovebug Hugs,
Thursday, August 20, 2009
Connor's 3 1/2 year photo's --- I know we have been late in posting current pictures...so here you go!!!! Isn't he getting big? We are having so much fun with him and he is such a joy to our hearts!!!!!!!
Connor had such a blast at his photo shoot at Indigo Studios....Russell Lorne did a great job capturing Connor "in his element"!!! Here he is standing up saying "Hi Friends"!!
Alex at 9 months!!!
Such a happy guy!!!!
I love that toothless grin!!!
We are so blessed with these handsome fellas!!!!
Sunday, August 16, 2009
Once again I find myself apologizing for not making time for the blog. These 3 munchkins keep me on my toes around here and summertime also carries its own busyness. So here's a bit of a rundown on life around our house.
July brought HOT HOT HOT weather around here and I thought the boys might just melt up in their bedroom. Unfortunately, they have the hottest room in the house....so those nights were pretty unbearable for them (and the rest of us) because of the heat. We did survive it though and we took off for Eastern WA for some vacation the 19th of July. Myself and the kids went to Leavenworth with my folks for a week and then Randy met us over there at the end of that week and accompanied us to Wenatchee for another 5 days with the Robertson side of the family. Our time in Leavenworth was hot and fun, however, Connor ended up having another 'bout with MRSA. I caught it right away and started treating it, but there's never a calm moment in my heart when that little fella is sick. He ended up coming back home with my parents and we kept Mackenzie and Alex with us for the Wenatchee part of the trip. We endured record high temps with the rest of the state that week and were quite glad that we opted to stay in a hotel instead of trailer camping this year. We had a nice time with family, as we always do and had fun in the pool as well. Randy took some time to get back out on the water and do some skiing, which he hadn't done in 2 years...so he loved that. I was hoping for a day on the water as well to do some skiing or jet skiing, but I realized that my grasp is still not what it should be to do that, so I was with the kids.
This summer has been a trying time with Randy gone so much. It seems that his schedule just doesn't let up and we only have him home for maybe 3 days at a time, but just last week he had been gone for 6 days, came home for 30 hours and now he's gone again for another 6. Whew....it is hard to keep my chin up some days, but I really am trying to manage with a joyful heart. Some days are not as successful as others in this department, but the days keep moving forward.
Our littlest guy, Alex will be turning the big #1 in just a month (Sept. 15th). I can't believe it's already been a year. Where does the time go?? I wish I knew the answer to this question, but in the hectic life we all seem to lead, it goes without saying that we loose so much time in the process of doing life!!!!
Alex has struggled to get teeth. As of today, he finally had a top and a bottom tooth sneak out from underneath the skin. I think this poor little fella is gonna get 6 or 7 teeth at once...from what it looks like in that swollen little mouth of his. He hasn't been sleeping well, which is always difficult, so I look forward to these teeth coming so we can get back to a normal sleeping schedule. Other than that, he is such a happy little guy and so much fun....He is almost walking, so we are hopeful for independent steps by his first birthday.
Mackenzie continues to be my outdoor girl. She has a great love for rocks. She could stay outside all day collecting rocks and digging in the dirt. That poor girls fingernails just can't stay clean enough for me, but hey, she's having fun. I keep wanting to start the potty training experience with her, as I really think she's ready, but I haven't made it a priority yet. I need to get on this for her sake, and mine. She continues to be a very picky eater, so that is challenging. Any tricks of the trade would be greatly appreciated if any of you are so inclined to share your thoughts. She's a pile of fun and her little, high-pitched voice is a hoot. She says some of the cutest things and we're constantly worried that we're not video taping enough or capturing all of these moments so that we have them forever. Some days I just have to remind myself that I am making a heart memory if I can't get it on film or video.
Connor is a busy little guy too. He is really flourishing with his "gait trainer" walker. He loves to walk and he has taken 7 independent steps on his own so far. We're so proud of him and we encourage him to become more mobile every day. He still loves his water therapy with Miss Erica and he looks forward to it every week. We had another insurance battle over the past month so he missed a couple of sessions, but it looks like that is all getting resolved nicely. Last week we had appointments up at Children's Hospital with his ENT. After doing the evaluation and X-rays, they have determined that Connor needs his tonsils and adenoids removed. They are both quite enlarged and could be a big contributor to his sinus infections through the winter months and his poor sleep habits. We will see his cardiologist this coming week to get him cleared for surgery and then hopefully, we will have the procedure done in early September. It will be a pretty big deal for Connor and they feel that he will, most likely, spend a couple of nights in the ICU before coming home. They prepared me for a pretty unhappy little guy for about 2 weeks, but said that they would provide good pain management for him. I have some apprehension with all of this, but I am trusting that we are moving in the right direction for him.
Our families are doing well. This coming week we will celebrate Dad Robertson's (John) 85th birthday. What a blessing to celebrate our parents and how wonderful they are. Mom Robertson (Ruberta) has been battling a cyst in her knee for a few weeks now. She was in a lot of pain at first and now that seems to be getting better. We are praying that this goes down on it's own so the doctors don't have to do any kind of surgery. Dad & Mom Milliren are doing great as well. Still trying to figure out if they want to sell their house or stay...no decision on that yet. Dad (Bruce) hasn't done near the amount of fishing this year that he normally does, but maybe he'll catch up this fall. Mom (RaeAnn) is busy as ever, but did slow down last week with a UTI, but she is feeling much better now. My brother Bryan just summitted Mt. Adams this weekend...way to go Bryan...I'm proud of you! There's nothing like standing on top of a mountain, huh? Anyway, everyone is busy now and getting ready for the start of school here in a couple of weeks.
Well, there you go...another update on our busy family life. My to-do list keeps getting longer and longer and I find it harder and harder to get things crossed off.....such is the life of just about every mother I know. Keep us in your prayers as always, and know that we very much appreciate all of your love and support for our family.
Friday, July 17, 2009
But as I reflect back on Littlebug's Journey I can't help but remember where he came from....and praise God......for where he is today! It would not be so without the prayers of all of you. Lori and I want to deeply thank you for your prayers and petitions on behalf of our precious Littlebug.
And ya know....... I think God has a very special place in his heart for the prayers of his little ones....and I know he's hearing our Littlebug!
Thursday, July 09, 2009
Sunday, July 05, 2009
I remember when I used to be so good about updating the blog on special occasions and writing about all of the wonderful things, and sometimes not so wonderful things happening around our house. Well, that was before 3 little firecrackers keep me busy ALL THE TIME!!!! I'm sorry that I haven't updated more, but I simply can't find the time on most days. I know that everyone is waiting for more pictures and more posts, so please be patient with me. I really want to put pictures up of Hawaii, but quite frankly, I haven't even gone through our pictures yet and it's been over a month now. So, again....please bear with me!!!
We had a nice 4th of July. Lots of great BBQ and sunshine. Alex held his first sparkler for his first 4th of July......So Cute!!!!
So this is how we are....
Randy ~ Poor guy had a toothache so bad last week, he ended up in the dentist office twice and finally had a root canal. He's doing much better and back at work as of yesterday, 4th of July! Still flying about 21 days a month for AA and wishing that life wasn't passing him by while he is away from the family. While he is at home, he is doing an awesome job maintain our little garden. We've enjoyed some fruits and veggies from our bounty and I even made a small batch of homemade hash browns the other day with our first handful of baby reds. He's working hard to keep our grass green this summer, which is ending up to be quite a big job. But, it's green and lush....Good job honey!!!
Lori ~ The sea urchin wound has proven to be much more of an ordeal than one would have imagined. Swelling is still pretty great in my index finger and palm and still no feeling yet. I am using it without a cast or wrapping on it so I can get used to not protecting it. Doctor says it may be 6 months or more until feeling comes back. Uuugghhh!!!!
Connor ~ Enjoying pool therapy for the summer since his other therapy's have stopped until the fall. He is walking with a "gate trainer" walker everyday. It is so fun to see him in this little contraption.....He's even run in it a couple of times. He had to go on antibiotics on Friday of last week for a sinus infection so he has been fairly miserable in the heat with such a bad cold and cough. He has pulled his entire g-tube (fully inflated balloon and all) out twice in the last week. He is getting stronger and stronger and his nighttime feedings are getting more and more difficult. We are really seeking wisdom on how to proceed with this dilemma!!! He also had his 3 year pictures taken a couple of weeks ago...they turned out so cute.....I will post them soon.
Mackenzie ~ Growing like a weed and wants to be outside ALL THE TIME!!! We were recently given a big wooden big toy with a swing and slide from our neighbors who didn't need it anymore. Randy has worked tirelessly to get it installed and safe so she can play. She loves it and loves digging in the dirt and picking raspberries and strawberries from our garden. As hard as I try to keep her a girly girl, she digs more, falls down more and has the dirtiest fingernails I've ever seen. Grandma Nanny tells her she could grow a garden under her nails. She finally lets me paint her toenails (which she calls Toneys) so you can't see the dirt as much on her feet. I think she has a bit of a tomboy streak in her....she has bruises up and down her legs from climbing just like you'd see on a little boy!!! Suck a stinker!!!
Alex ~ Still no teeth yet...but he's definitely working on them. He is such a happy fella. Smiling all the time and eager to be with you!!! He is cruising all over the place and curious about everything. He is pulling himself up the standing position and side-stepping around his toys and the furniture. I think he will be walking in no time...Watch out world!!! We finally got his 9 month pictures done and they are adorable. Again, I will post them soon. We now have updated pictures 0f all the kids and that makes me feel good. Alex is really fun to watch....He is definitely going to be our problem solver. He studies things and trys to figure out the way things work without getting frustrated, unlike his sister who gets frustrated easily if things don't work the way she thinks they ought to!!!
So, there you have it...a little more info on things going on in our neck of the woods. We hope you are all enjoying your summer and this beautiful, great NW weather that we are having.
All our Lovebug Hugs,
Thursday, June 04, 2009
We are hopeful that everything will heal quickly and I can get back to the business of being a wife and mommy soon. Randy is taking a little time off to be home with me and the kids and Grandma Nanny will be close by as well.
Will post with updated info soon. Thanks in advance for your prayers!!!
PS ~ The snorkeling was fabulous and I had the chance to swim with turtles....Too fun!!!!!
Wednesday, May 13, 2009
Say a prayer that we all get over this soon.
Sunday, May 03, 2009
Connor is involved in 3 therapies during the week. Monday's is a big day for him. He has physical therapy here at home with his new school therapist, Matt. They are getting along beautifully. He is genuinely excited to see Matt on Monday's. They've been working on a really neat platform swing that Connor loves. It is really working his core strength and you can tell he is working hard when you see him on it. Connor is sidestepping along the couch and other surfaces as well as pivoting his strength to turn corners and go in the opposite direction. This is a huge accomplishment for Connor. He was fitted for new orthotic shoes a few weeks back and we have just received them last week, so we are now working ourselves up to wearing them every day!!! Monday's are also academic days for Connor. His preschool teacher comes for 1 hour to work with him on educational goals. Right now, they are working on concepts such as in and out and cause and effect type of play. Connor enjoys his playtime with Teacher Noell.
Connor is also involved in occupational and speech therapy on Thursdays. Natalie and Katie work with him on his fine and gross motor skills while trying to incorporate sign language. There is a lot going on in those sessions which I think can be very frustrating for Connor, so we are not seeing progress in this department at present, but we press on. I think Connor's favorite day of the week (other than the days Daddy comes home) is Wednesday because that is when we get to go visit Erica and do one hour of pool therapy. He loves Erica and he loves the water. Splishing and splashing and kicking are a big hit with him. He is doing well with the therapy. It is not swimming lessons, so he isn't learning to swim. He is being challenged in his muscle strength and leg coordination in hopes that we will begin walking skills soon. He is progressing nicely in this area.....Remember, he marches to the beat of his own drum, so the timing may not be perfect, but, as I always say, "He's getting there"!!!
I have mentioned over and over and over again on this blog that we remain frustrated about the feeding/nutrition situation with Connor. He is still not taking any food by mouth. He is exclusively fed through his g-tube. We are becoming increasingly concerned that we need to push him and challenge him to eat by mouth. We try suckers in his mouth to give him a good experience and he will still have nothing to do with it. How we wish for the day when Connor will eat by mouth. This remains a struggle...a big one!!!! Enough said!!!
Alex is just as happy as ever. He has a ready smile as soon as you catch eyes with him. He loves to play and eat!!! He's the chunkiest of all our kiddo's and we just love the sight of that little baby fat on his legs!!! We always say, we could just eat 'em up!!! He is sleeping wonderfully with his brother in the "boys" room. They do so well together. Neither one wakes the other up. It is a great situation, and I can now count on them sleeping through the night, which is wonderful for this mom who needs her rest. Still no teeth yet, but Alex is working really hard on cutting those first bottom teeth. He loves rolling around to get to his toys...no crawling yet, but I think we could be getting close. He babbles all the time and I've even heard him mimick, Mama...but don't tell Daddy!!! At 7 1/2 months Alex is starting to exhibit seperation anxiety. I never really sensed this in either Connor or Mackenzie, but Alex is another story. As soon as he sees you leave his sight, he gets pretty teary eyed. And then, as soon as it started, he is happy again as soon as he sees me. I hope we can help him navigate through this time of finding some independence. No matter what, he is such a joy and makes our days fun.
Randy and I are anticipating a wonderful trip coming up in just a couple weeks. Mackenzie will have the fun opportunity to be in her first wedding....in Hawaii!!! Our niece, Lindsay is getting married on Maui. Kenzie will get to be one of the flower girls and will get to walk down barefoot in the sand on flower petals. What fun!!! So, Randy and I and Kenzie will head out to Maui on May 19th and will have a week of fun in the sun!!!! This will be a great time for all of us to be together, rest and play!!! Grandma Nanny & Pop Pop will be staying with the boys so they will have a fun treat as well getting spoiled by grandparents. We are blessed for their willingness to stay with the kids so that we can have this fun time. There are many preparations to get ready for, but it is all fun stuff. However, I had really wanted to drop this pesky baby weight before the trip....no such luck....I have some work to do to get back to the real Lori!!! I need to step up my commitment to looking and feeling better.
Anyway, that is what's going on around here. Hope all is well in each corner of your world, wherever that may be. If I don't have the opportunity to post before we leave on the 19th, rest assured I will post when we return from Hawaii. You can see I've changed the way the blog looks a little. I guess I thought it was time for a change....It's kinda like changing around the furniture at home, Ha Ha!!! You can continue to view everything the same way as you used to. Please continue to leave us comments when you visit. We LOVE to hear from everyone, some days, it's just what I need. You can also let us know your reaction by checking the appropriate box....praying for you, funny or love it!!! Just thought I'd have a little fun with some of the gadgets that are available to this blog. Thanks again for visiting. You all play a vital role in our family and were thankful for your commitment to visit us here on the blog.
Here's a selection of various Easter, Birthday, Outside and Professional Pictures
The Kids Easter Baskets...Connor (left end) Mackenzie (middle) Alex (right end)...Spoiled little bunnies!!!
It's my very first Easter everyone!!!
Ok, has everyone seen the movie "A Christmas Story"? I know Mama didn't put me in a pink bunny suit....but this is comin' real close guys!!!!!! What were you thinking Mama????
Hey, these bunny ears aren't so bad. I think I like Easter grass!!
You mean I have to start learning to drink from a sippy cup now??? Rats, I love my BaBa!!!
Why is it then when Mama leaves the house....even if it's just for an hour or two....dirt and mud seem to quickly follow????
Getting dirty with Daddy!!!
Making mud puddles...
I just have one question here....Is Mama gonna find out about this????
There's our sunshine girl...Thanks for the pretty sunglasses Auntie Maureen... I wear them every day to get ready for our big airplane trip to Hawaii!!!
I love to chew on my toys!!!
Alex snuggling with Auntie Marsha at the big family birthday party....I was pooped out!!! Thanks for the snuggles and lovies auntie!!!
Connor and Daddy opening presents....Hey Grandpa & Grandma...I love my new set of sports balls. They're really cool!!
Playing with Daddy and my new basketball!!
Mackenzie's 2 Year Portrait!!! Isn't she a big girl. She got to be all dressed up and we even curled her hair with a curling iron for the 1st time. She definitley had the beauty treatment.
Sitting pretty and smiling like a good girl!!!
Being a cutie pie!
I think she really had fun at her photo shoot!!! We got lots of good pictures. Now it's Alex and Connor's turn for their next professional pictures. We'll post them as soon as we get them back.
Wednesday, April 15, 2009
My little funny bunny boy!!! 7 months old today...where does the time go?
Ready for dunkin' Mama!!!
Connor was not particularly into Easter Egg coloring this year. He was awfully tired, and I realized yesterday that he has 1 new little spot that the doctor thinks could be MRSA again. We're treating it with topical cream this time and it looks much better today.
Our little barefoot princess....Looking at all the colors....
Mackenzie turned 2 on April 2nd. It was her golden birthday because she turned 2 on the 2nd. We celebrated with a Mickey Mouse party and took her to Charlie's Safari....Just Daddy, Mama and Kinzie. I'll post pictures soon.
Who's the fairest bunny of them all....ME!!!!
Tuesday, March 24, 2009
Here's how it went down.....I had been calling daily to find out what the predetermination review results were and there hadn't been any news in days, until Friday when they told me that they had sent me out a denial letter for coverage of Connor's supplies and formula. When the woman told me this she was aghast at the fact that her company actually sent me a letter telling me I couldn't feed my little boy. As we talked she told me that she was the mother of a 3 year old as well and she just couldn't fathom being in our position. She knew there must be a way to find a positive result to the situation so we began putting our heads together and we came up with a plan. Throughout our conversation I told her that I had prayed before I even called that day and asked the Lord to give me favor with the company and to get a helpful and kind person on the other end of the line. I told her she was an answer to my prayers and she said, "Great...I'm a Christian too!!!" We worked on putting another letter together with procedure codes and diagnosis codes and prayed for the best. She said she would personally walk the letter over to the proper department and let me know the results. Yesterday she called me to let me know that the results were in and we had received full coverage for Connor's supplies. I feel so blessed that she was willing to help us in the process and the battle for our insurance compay to see the need for this.
So, the weight has been lifted for coverage and we can place our order without having to worry. We still have to meet the yearly deductible and if our out of pocket expense of $1500 is not met, then they will cover at 85%. Once our out of pocket expense is met (which it is for this year already....) they will cover at 100%. It is always up to a yearly review, but we are confident that with the help of the nice lady at BCBS we won't have any trouble .
So, there you have it....answered prayer. Thanks for all you advice and prayers on this issue. I am beginning to understand the insurance battle that so many of us face on a daily basis and I realize that not everyone gets good news all the time. My encouragement for those of you who might have similar battles is to never take no for an answer and keep trying. As frustrating as it is, keep calling and keep pushing. With the economy the way that it is, we can't be too frugal with our finances and with our precious treasures...our children. Find someone on the inside of your insurance company who can be your advocate on the inside and hopefully you will make progress and you will get good news as well.
Although we continue to have challenges, this is one I can cross off the list for the moment.
Saturday, March 21, 2009
So far there are no other signs of it on him or anyone else, so that is positive. Since he is highly contagious the doctor urged me not to take him or even the other kids out around other people for at least 5 days, if not 10 just to make sure we don't spread any unwanted germs around. So, we're home bound once again.
I am desperately seeking signs of life and springtime anywhere I can find it and today, just outside my garage door I saw my first Hyacinth of season peeking her little head out...I think she will be a pale shade of yellow from what I can tell of her shell. Thank goodness for beauty in the midst of illness.
Thanks for your much needed prayers. Our spirits feel lifted although the burden of sickness remains. Just a quick update on our insurance situation that so many of you have asked about. Friday when I called the insurance company they told me that they had just sent out a letter dated Mar. 20th that our request for coverage had been denied. YIKES!!!!! The woman on the other end of the phone was both compassionate and efficient in her effort to help me come up with a different plan. She told me that she was also a Christian and the mother of a 3 year old and she couldn't comprehend that her company was going to tell me that I couldn't feed my little boy. She assisted me in coming up with procedure codes that may be authorized, but the final word will come in on Wednesday of next week. Please keep praying that we receive good news on this situation. I still cannot comprehend trying to come up with and extra 4K per month for Connor's enteral (feeding) supplies. "WITH GOD, ALL THINGS ARE POSSIBLE."
Thursday, March 19, 2009
Unfortunately, today is not that day. I just returned home from the doctor with Connor and he has somehow contracted staff infection with a good chance he could have MRSA. He had been fighting an ear infection, that I thought was well under control until a couple of days ago when I noticed large sores in his left ear. They continued to become more red and irritated and so I took him into the doctor early this morning. The doctor was sure it was staff infection so we started an antibiotic. However, he also said that the appearance of the sores were consistent with the look of MRSA. He lanced one of the sores to get a sample to send to the lab to have it tested. We will know for sure by Saturday. If it is MRSA, then we will stop the antibiotic and start a specific drug that targets MRSA.
Needless to say we are praying that this is not MRSA. Our research indicates that MRSA can have tragic results, especially in children with a low immune systems and those who are medically compromised. I have promised myself to stop looking at the information until we know for sure, but I would be lying if I said I wasn't worried.
Connor is in great spirits and doesn't act like he's sick at all. He doesn't have a fever, which the doctor said was a really good sign. So, we will continue to pray for Little Bug's healing and we will pray that this will be a quick passing infection.
Lovebug Hugs to all,
Saturday, March 14, 2009
We are all feeling better....It took about 4 weeks, but everyone is on the upside of sickness. Connor has a bit of an ear infection, but we are treating that with drops and he is in good spirits. Alex and Mackenzie are doing great and acting like a typical 2 year old (almost) and a 6 month old.
Randy is gone A LOT and we are struggling with finding balance. Everyone seems to think the life of an airline pilot must be so glamorous.....IT'S NOT!!!!!!!! He averages being gone about 22 days a month and is never home for more than 3 days at a time. It doesn't leave a lot of room for normal family life. I'm not complaining, I'm really not....We are so grateful that in this economy Randy has a job, so we will just pull up our boot straps once again and find a way to survive and thrive in the midst of it.
Connor's schooling has become quite an issue. We have decided that his preschool class is not the best placement for him and we are awaiting a new IEP to discuss other options for him and his educational, developmental and therapy needs. It is a fight, I will tell you that, but this Mama is up for the challenge, whatever it takes.
Mackenzie will be 2 in just a few weeks. I can't believe our little sweet pea is such big girl. She has become a bit of a finicky eater.....that's not fun, but I'm hoping she will grow out of that. She is talking more and more and is really a little chatter box. Some things we completely understand, other things we think she may be creating her own language. We work with flash cards and try to have her repeat everything we say. She's coming along on her animals and sounds, but she seems to only want to "show off" with us. Little stinker!!!
Alex is such a handsome fella!!! He smiles all the time (when he's not crying...Hee Hee) and has the greatest little laugh. He is definitely teething and we know that is miserable for him. He hasn't got the sleeping through the night thing down yet, which is really becoming a difficult thing for me. I do much better with the tasks of the day when I am rested. We have been unwilling to let him cry at night for fear that the other munchkins would wake up, but I think we're going to have to start letting him work it out a bit more on his own. Alex is rolling over sometimes, but not consistently. It will come all in time!!!! He loves to watch his brother and sister make him laugh...it's so cute. He is a big fan of his exersaucer and his Johnny Jump Up!!
Lori is trying her best to stay on top of all the family needs. We have recently transitioned away from Randy's military benefits and into the real world of insurance. It is scary to say the least. We were incredibly blessed by 100% coverage up until March 1st. I am currently fighting the battle of coverage for Connor's home health for his g-tube and feeding supplies. We have been told that Blue Cross/Blue Shield does not cover anything for home health coverage. This is scary because it is about a $4,000.00 per month cost. I am trying to go the route of getting letters to explain the medical necessity of these items and request for coverage. The final word is not in yet, so we are certainly hoping for positive results on this issue.
I know it is a travesty that I haven't posted pictures in a while.....I will honestly try to find time to do that. Quite frankly I haven't wanted to take pictures of the kids when they have all been so sick. Who wants to see sick kid pictures!!! Now that everyone is on the mend, I will try to snap some fun shots of the kids so everyone can see how they are growing.
Thanks so much for all your kind comments and encouragement....we LOVE getting your comments. Sometimes your comments have been exactly what I've needed to get through another day...so keep 'em coming.
Sunday, February 15, 2009
It doesn't end there.....Wednesday Alex and Mackenzie came down with the same symptoms and high fevers....Alex had a fever of 102.4 and Mackenzie had a fever of 102.8. So off we headed to the doctor with the two of them. Diagnosis....Mackenzie has the croup and Alex has bronchitis. Everyone had a miserable night with little sleep and Thursday everyone was worse. We let it ride through the day to see if there was a light at the end of the tunnel, but alas, another sleepless night with miserable sick kids. Friday I ended up taking Connor and Alex back to the doctor (4th trip this week) and I was convinced that someone was going to end up being admitted to the hospital. After X-rays were taken of Alex it was determined that he has bronchial pneumonia and it just has to run it's course....Connor was definitely worse, but since he is already taking antibiotics there was no change in his course of treatment. So we headed home again for what looks like the long haul of sickness.
Ok, now let's top it off....I have picked up the same virus, same symptoms and same high fever. I honestly think America's Funniest Home Videos has secretly installed hidden cameras in our home so someone can get a good laugh out of our misery. Thankfully Randy is pretty well symptom free as he is back on the road, as of yesterday, with American Airlines. My mom has graciously agreed to, once again, bring her helping hands over to help us out. It's now over a week and it doesn't look like there is any end in sight.....yet. I know this will eventually pass, but I can't help but feel totally overwhelmed with why this keeps happening to us. We never thought that we would be the family with the sick kids and the ones who couldn't partake in the normal activities of daily life, but here we are in a place that we never thought we'd be.....AGAIN!!!
So as for school........I don't think we'll be sending Connor back to school as he is just too medically fragile to get any real benefit from the experience. I am so sad because I was so looking forward to this new adventure for him and an exposure to something fun and exciting. We were hopeful that this would increase his leaning ability and his developmental progress, but for the time being it just ceases to be productive to continue because when he (and the rest of us) are sick there is no progress being made.
Well, there you are. I really can't believe that we find our self here, but yet, here we are. I will close now as there are runny noses to wipe and much comfort to give. I know we've asked for a lot of prayer, but we humbly ask for it again. Please pray that we would find some reprieve from the storms of life and sickness around here.
Tuesday, February 03, 2009
Connor is so happy to be starting school today. He woke up in a great mood....smiling at every turn. Here he is having a good healthy breakfast before leaving for his big day. I was always taught to have a good breakfast before school.....how I wish I was scrambling eggs and flipping pancakes for him. I hope that I will be able to do that for him one day, but for this day it's his usual dose of Pepteman Jr. - Full of vitamins and minerals....I hope!!!!
This was the card that I found for Connor over a year ago. I've had it tucked away in a special place just waiting for this day to arrive. It was waiting for him at the breakfast table. How perfect that it's a "Little Bug"!!
Ok Connor....Here's the deal...You are going to school today without me so you better learn lots of fun games to bring home and teach me OK. You're the first one to start school so make sure to remember everything so you can tell me OK. Have fun at school you lucky bug!!!
I'm all strapped in the "bug bus" (aka Mama's van) and ready to roll!!
Arriving at Alpac Elementary....My PreSchool!!!
Hey, I found myself in the big mirror in my classroom. How cool!! That's my new friend Victor behind me.
Here I am with Teacher Noell....Isn't she pretty....She's my new teacher. She made sure the classroom was all ready for me with special chairs and even a special toy that she knew I would love...It lights up, plays music and has balls.....MY FAVORITE!!!
I had a great time in the therapy room.....Lots of fun stuff!!!
Here I am with Theapist Natalie and Therapist Shayleen...They are my new friends...But I can tell they are gonna make me work hard to learn new things...Good for them, I need someone to crack the whip every now and then.
Who would've thought....my first day of preschool and they let me use scissors.....and come to find out, they're standard issue here in preschool. Yippee...
I didn't like them very much though, so teacher Noell used the hand over hand technique to help me learn. I still need A LOT of work!!
Here we are cutting out sparkling fins to put on my fish!!!!
Craft time with my new posse of preschool pals.....Kendrick, Cole, Victor!! I hope we'll be great friends!
How cool is Teacher Noell???? She let me play with shaving cream while the other kids had snack time....That was fun. Hopefully I will be having snack time with the other kids soon, but until then, I like the special attention!!
Look at me.....I'm practicing getting ready to shave.....Don't worry Mama I'm not growing up that fast yet....I was just kidding!!! HEE HEE
Sunday, January 25, 2009
Exhausted from the traveling is an understatement. I am just whooped!!! Tired, sluggish, headache....Ugghhh!!! The kids had a difficult time sleeping last night, so there were lots of moments in the rocking chair. Randy had to leave for the airport again bright and early this morning as he starts back to work this afternoon. So, life moves on......No change, just the typical grind.
It's obvious that Connor missed his toys and Mackenzie a lot. There have been lots of smiles and giggles which does my heart good. Little Alex is getting back into the swing of things getting Mama's milk without any difficulty....let's just hope and pray Mama's milk comes back in 100%.
I was hoping to post more pictures, but a las, Randy took the other computer with him and that's where they are all stored. I will have to post pictures after he returns from this work trip. I think we'll have a 1 or 2 day turnaround before he will leave again for 6 days.
So here we are. Home!!!!
Friday, January 23, 2009
Frustrated and Tired.
Thursday, January 22, 2009
We are at the Ronald McDonald House tonight and tomorrow we will see the original doctor from Monday again. The only things that they have told us are to change the rate of speed at which Connor gets his feedings and maybe that, along with a formula change will do the trick. In their eyes, there is no urgency of finding what is causing the problems, only experimenting with things we've already tried. Granted we are tired, frustrated and far from home, but we are starting to feel that things are never going to change and this was just a major wild goose chase.
Forgive the candidness in which I speak, but it is from an aching mother's heart who is weary from this long battle. As always, we remain hopeful but even that is waning.
I understand our little angels at home got lots of extra TLC and playtime today. How we loved the pictures and videos on Facebook. We are ready to come and see them.
Wednesday, January 21, 2009
Another thing thrown out by one of the doctors today was something called Herschbergers Disease. This is where the muscles and the nerves in the anus do not cooridinate during a bowel movement. They aren't sure, but they will check for it. So far, a lot of talk and not a lot of movement, but I guess it will happen all in time.
We were able to get an available room at the Ronald McDonald House which is right across the street from this hospital instead of across town. I will be staying in the hospital with Connor tonight and Randy will be over there. Depending on what the plan is for Connor, at least we have a convenient and comfortable place to stay once we are discharged from the hospital.
Thanks for all your continued prayers. We still need them very much!!!!
Lovebug Hugs For Tonight,
Today back home Miss Mackenzie had a fun play date with Auntie Shawn. I've seen the pictures over email and watched a brief video of their time together. It brought tears to our eyes to see her having so much fun, but we are happy to see her having fun. It's harder than we ever imagined to be away from the other kids. Our thanks go out to Grandma Nanny and Grandpa for staying with them and everyone else who is stepping in to provide company and fun for them. You are all dear to us.
The start of the day...a big smile!!!
A silly look from a silly boy!!
Playing Davey Crocket with Daddy and Mama on the bed!!!
Davey, Davey Crocket King of the Wild Frontier!!!
Checking into Nuclear Medicine for all of my testing. You can tell by the look on my face this isn't gonna be fun.
Here's the big machine that took my pictures 7 times yesterday. I had to lay still for 4 minutes...It took 4 people just to hold me still for that long.
Mama's taking off my probes.....Yippee, that means I'm done with that test!
Hey Mackenzie, we found Mickey Mouse in Minnesota. What's he doing here? He's supposed to be at home with you in the clubhouse doing the Hot Dog Dance....Hot Dog Hot Dog Hot Diggity Dog!!!! I miss morning cartoons with you sis.....I'll be home soon for a breakfast date with you!!
Connor cruisin' along the waiting room floor to Daddy!!
Watch out ahead....It's a runaway Bug!!!
Connor and I went exploring and you wouldn't believe what we found. Daddy took the shuttle to WalMart (he forgot socks...Mr. Always Prepared) and me and Mommy found lots of fun stuff. The first thing we found was a cool beaver and duck pond on the kids unit.
Here we are...see the little ducks?? I'm glad Daddy and Abbey weren't here to see those ducks or there would have been a problem!!!
Mama even found a big fish tank so we could watch Little Nemo!!!
Can you believe it, we even found Noah's Ark.
Here's proof that there really is a Mrs. Noah!!!!
I love to pose with my new friend Teddy Bear!!
Saying a prayer in the chaple!!! Lord, Please heal our little boy!!
Ok, it's time for school. Mama had to get some educational time in with me so we headed to the library for some reading. It's always nice to read a little Elmo and Winnie the Pooh!!
Oh yeah, and Mama had to stop off in the pumping room a few times....That Alex is sure lucky that Mama wants him to have the good stuff.
Playing Music Box Dancer with Daddy...Yep...that's right, my dad, the pilot, knows Music Box Dancer!!!
Sticking my tongue out with Daddy is fun!!!
End of a long day (Tuesday) waiting for the shuttle back to our hotel and we need some rest...can you tell???