I am remiss at posting on the blog....AGAIN!!!! Sorry to all our readers that really want updates on how things are in the Robertson home.
We are all feeling better....It took about 4 weeks, but everyone is on the upside of sickness. Connor has a bit of an ear infection, but we are treating that with drops and he is in good spirits. Alex and Mackenzie are doing great and acting like a typical 2 year old (almost) and a 6 month old.
Randy is gone A LOT and we are struggling with finding balance. Everyone seems to think the life of an airline pilot must be so glamorous.....IT'S NOT!!!!!!!! He averages being gone about 22 days a month and is never home for more than 3 days at a time. It doesn't leave a lot of room for normal family life. I'm not complaining, I'm really not....We are so grateful that in this economy Randy has a job, so we will just pull up our boot straps once again and find a way to survive and thrive in the midst of it.
Connor's schooling has become quite an issue. We have decided that his preschool class is not the best placement for him and we are awaiting a new IEP to discuss other options for him and his educational, developmental and therapy needs. It is a fight, I will tell you that, but this Mama is up for the challenge, whatever it takes.
Mackenzie will be 2 in just a few weeks. I can't believe our little sweet pea is such big girl. She has become a bit of a finicky eater.....that's not fun, but I'm hoping she will grow out of that. She is talking more and more and is really a little chatter box. Some things we completely understand, other things we think she may be creating her own language. We work with flash cards and try to have her repeat everything we say. She's coming along on her animals and sounds, but she seems to only want to "show off" with us. Little stinker!!!
Alex is such a handsome fella!!! He smiles all the time (when he's not crying...Hee Hee) and has the greatest little laugh. He is definitely teething and we know that is miserable for him. He hasn't got the sleeping through the night thing down yet, which is really becoming a difficult thing for me. I do much better with the tasks of the day when I am rested. We have been unwilling to let him cry at night for fear that the other munchkins would wake up, but I think we're going to have to start letting him work it out a bit more on his own. Alex is rolling over sometimes, but not consistently. It will come all in time!!!! He loves to watch his brother and sister make him laugh...it's so cute. He is a big fan of his exersaucer and his Johnny Jump Up!!
Lori is trying her best to stay on top of all the family needs. We have recently transitioned away from Randy's military benefits and into the real world of insurance. It is scary to say the least. We were incredibly blessed by 100% coverage up until March 1st. I am currently fighting the battle of coverage for Connor's home health for his g-tube and feeding supplies. We have been told that Blue Cross/Blue Shield does not cover anything for home health coverage. This is scary because it is about a $4,000.00 per month cost. I am trying to go the route of getting letters to explain the medical necessity of these items and request for coverage. The final word is not in yet, so we are certainly hoping for positive results on this issue.
I know it is a travesty that I haven't posted pictures in a while.....I will honestly try to find time to do that. Quite frankly I haven't wanted to take pictures of the kids when they have all been so sick. Who wants to see sick kid pictures!!! Now that everyone is on the mend, I will try to snap some fun shots of the kids so everyone can see how they are growing.
Thanks so much for all your kind comments and encouragement....we LOVE getting your comments. Sometimes your comments have been exactly what I've needed to get through another day...so keep 'em coming.
Lovebug Hugs,
Lori
8 comments:
Lori Im glad you are all on the mend... I dont know how Auburn schools work, but I will pray for you to get the changes you need for Connor, Ive heard its like pulling teeth sometimes.I havent had and problems with Skys IEP, but Ive heard nightmares from others. I cant wait to see pictures, your kids are always so cute... Always thinking about you guys, maybe this summer when Randy has a day home you can all come up for a visit and good eats!!! Hugs Sheila
So glad you are all feeling better. Don't give up on the IEP. Sometimes it seems like they try to wear you down. We always have the docs write reccomendations for at least double therapy, etc. that we want. That way the distric feel like they have "won" when we get the hour a week we really wanted in the first place! Kind-of like buying a car. LOL! Anyway, I also wanted to let you know that our BCBS insurance HAS been covering medical and feeding supplies. It may depend on the contract. Also, you might have to go through the hassle of applying for WIC so that you can be turned down, and get a letter stating that he is not eligible. What a pain, but that is what we had to do until Christopher was 5. UGH! Let me know if you guys need any more info on Wisconsin. Hugs and prayers to all!
Steph and Christopher in IL
Lori and family!
I think of you all often and check in here from time to time to see how things are going.
Sorry to hear you all have been sick, but happy you all are mending well and spirits are good again.
Cheryl M
we are praying for you!
I'm glad you are all feeling better. Reuben will be 2 in April and he is really starting to use sign language. That has been great since he isn't talking a lot yet.
Hi Lori,
Thanks for updating us. I know you are feeling like you are in the trenches. Hang in there! I am praying for you.
Love, Auntie Heather
Man, you do so much and now you're having to deal with the insurance. That's terrible. I'll definitely be praying that things go better where that is concerned. Insurance is a real fight for people that don't deal with what you do on a daily basis. Good luck with that.
I'm glad to hear that your family is starting to feel better. I've been wondering. Teresa and Les are pretty good and keeping me updated on what they know, but it's good to read your words and hear that things are looking up. I pray for all of you daily. God Bless Lori. I think you and Randy are AMAZING. You're wonderful parents. You must have INCREDIBLE patience. Can you pass some along? ;0)
We'll continue to keep you in our prayers.
Lori,
Lou has a really interesting story about being turned down for an insurance settlement that he was truly owed. Lou went to the agent's office, which was in a large cubicle setting, to plead his case and ask for new consideration. The secretary showed Lou to the agent's cubicle and Lou then overheard his agent telling another agent that they were going to turn Lou down again for no reason just in the next cubicle! They continued to banter about which insureds would receive payouts and which would "have to tough it out." There was no rhyme or reason to their decision-making, just political gamesmanship. The agent obviously had no idea Lou was just within earshot.
When the agent came around the corner to his cubicle, there sat Lou! The agent was very embarrassed and Lou simply told him that he was going to file a federal lawsuit based upon what he had heard. The agent handwrote a check to Lou on the spot!
Case in point, do not take "No" from these fradulent insurance hounds. They have to hear your case and it is better if you do it in person. Take the time to go to the higher-ups and show them pics of your child. Personal pleas go over big. Tell them that 'no' is not an option and that Connor is in dire needs of this care. Threaten them with legal action if they balk.
I'm glad that the kids are feeling better!
Love,
Ruthie
P.S. Rachel is pregnant with her 1st!
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