Friday, June 09, 2006

Care Conference Update!!!

Today's care conference went well. We were joined in the conference room with all the "big wigs" regarding Connor's care. They were all able to answer our specific questions and they were also able to make their case regarding Little Bug's surgery. The ultimate decision was for us to wait until mid September for Little Bug's heart repair. The reason for this is that he must gain more weight so that his overall health is better and that his lungs are stronger and more clear. He is getting there with overall health increases, but he's not there yet. Proper nutrition and adequate weight gain are going to be the key to his ultimate success.

Our big news is that for two days straight Connor gained weight. Yippee........Bring out the circus clowns, we're having a parade in his honor!!!!! He gained 1 ounce on Thursday and he gained an ounce and a half today!!!! Way to go Little Bug. Since we have decided to move forward with the plan for surgery being in September, the next question to conqure was, "When do we get to go home?" Basically, Connor has to prove his weight gain and reach his goals with feeding. The goals are 30 calories per ounce, which he has met and 27 ml's per hour for volume. He is currently at 22 ml's per hour and we are planning to go up 1ml every other day. We just have to make sure not to rush the little bug because he is awfully sensitive to sudden changes in his system. We figure we should be shooting for going home sometime the week of the 19th if everything stays on course.

WOW!!!!! We actually have something to shoot for as a goal for going home!!!! This feels like a major victory for us. Please pray that Little Bug continues to tolerate his feed changes and that we can stay on the fast track towards home. I will write more tomorrow, but I had to update before going to bed. Daddy is in with Connor at the moment doing his final binki trainer with 10 cc's of mama's milk before bed time. We're having so much fun feeding him and watching him relearn the process of eating. It won't be long before we start to see this precious child take off and do mighty things!!! We are so proud of our son. We love you Little Bug!!!!

Lovebug Hugs,
Lori

19 comments:

wyndi steve & izabell said...

We are so happy Connor is doing well!!!!!We will pray for his happy homecoming, and for Connor to keep up with his wonderful daily improvments! love wyndi izabell and steve

Berck Family said...

We are happy to hear that Connor is getting stronger and gaining weight. The Lord is mighty and awesome. We will continue to pray for his strength and for his homecoming soon. We love you all.

Love Aaron Amber Caleb and Isaac

Anonymous said...

OH MY GOODNESS!!!!!!!! THe thought of possibly being able to come home in 2 weeks must thrill you!!! What a roller coaster ride you 3 have been on and yet you have handled yourselves so incredibly - Praise the LORD! It will be soooo exciting to see Connor grow into the Mighty Man of God that he already has shown us! I think that you will definitely have to keep up this blog even when you are home to show everyone the Power of God in this little man's life! Well have an awesome, snuggly, cuddly time feeding this little guy.
Love
Tammy

Anonymous said...

OH MY GOODNESS!!!!!!!! THe thought of possibly being able to come home in 2 weeks must thrill you!!! What a roller coaster ride you 3 have been on and yet you have handled yourselves so incredibly - Praise the LORD! It will be soooo exciting to see Connor grow into the Mighty Man of God that he already has shown us! I think that you will definitely have to keep up this blog even when you are home to show everyone the Power of God in this little man's life! Well have an awesome, snuggly, cuddly time feeding this little guy.
Love
Tammy

Anonymous said...

Hi Lori it's Lynn,
We're so happy that you and Randy have this wonderful time of feeling Connors progress and reinforcing your hope and strength. How wonderful for you all to be able to catch your breath! We're sending you big smiles :)

Anonymous said...

Connor,
We are so glad to hear that you are growing and getting stronger everyday! We are all rooting for you. GO Connor GO!
Love Heidi, Ron, Oscar, Willy and Theo

Anonymous said...

That is just the best news! Way to go Connor. Keep up the good work so your mommy and daddy and can take you home where you all belong!! Keep posting those big numbers little bug. Take Care.
Susie DeVries

Denessen Family said...

Oh how happy we are to hear such great news! Thank you Lord for all the little miracles along the way to Connor's good health. We will continue w/ prayer's until he is happy, healthier & at home where he belongs! Good job Connor, and as the addage say's "you've come a long way baby!"

Lovebugs hugs, Auntie Teresa, Uncle Ted, Cousins Chloe, Emma & big buddy (spots!) Jake!!!

Anonymous said...

That is GREAT news! We are so excited for you and will continue to pray for little Connor - soon he won't be so little :)

We love you,
Chris & Lisa

SMZ said...

He who began a good work, is faithful to complete it. Let all the world rejoice for our God is a Great Big God! What a wonderful testimony. Randy and Lori, may your heart sing as you embrace what Connor is created to be and do. Blessings, Shawn Z

Anonymous said...

Randy, Lori and Little Bug,
More things are wrought by prayer than this world dreams of. I learned that many years ago and it still holds true.

Congratulations on a job well done, Connor. You have deserved a well earned rest. Way to go.

Mo's Mom and Dad

Skylar Dean said...

Way to go little bug!!!! You and big bug Sky might go home the same day, that would be GREAT!!!! Going porable Tuesday, so we will come see you then!!!!! Big Bug Hugs Skylar

Anonymous said...

WOW! God is soooo good! We will continue to pray for his weight gain so that you really can go home in a couple of weeks. Oh Lori, we are sooo excited for you three!
Sue & family

Anonymous said...

Connor-

My oh my little boy! What a wonderful thing to hear that you are gaining weight! You keep up the good work Little Bug and very soon you will be home with Daddy and Mommy and Abbey. I'm SOOOOO proud of you......

XOXOXO

Anonymous said...

Lori~
I wanted to write a little note to you sooner than this but i just didn't seem to have the time.
I'm so glad to hear that Conner seams to be doing so well. I continue to pray for him daily and also for you and Randy.
I got to have a little chat with Randy the day of Erwin's funeral and let me tell you......he is so in love with you and your little bug. His love for the two of you just radiates off of him and it's so obvious that he is so proud of both of you....he was all smiles as we chatted about you two.
Anyways, I'm always thinking of the three of you, praying and believing that God has some great lesson planned for all of us through this.
God Bless and congrats on the great strides that Conner is making.
Love~Tia

Debi said...

WOW what progress Little Bug is making and how EXCITING to have a plan and goal for going home...PRAISE GOD ....what a day ...sounds like your meeting was productive and positive I had been praying this meeting would have some answers that were long awaiting for you..

Lots of hugs to your Little Bug...

Blessing
Debi

Michelle said...

Wonderful news to hear you have a date to aim for with getting out of the hospital! Keep gaining and growing Connor so you can go home!

Auntie Teresa said...

Hey little bugaboo,

I hear from Grandma R. that you hit 10 lbs.!!! Way to go. Keep it up!. She also told me you looked adorable in your blue jeans....you sure are growing up. Speaking of growing up....Happy birthday to you Happy birthday to you .....Happy 5 Month birthday, Connor!! We love you Honey!

Lovebugs hugs & Kisses!! Auntie Teresa

Brenda said...

Wahoo! This is so exciting to hear - Way to go Little Bug! It won't be long until he won't be so "little" anymore if he keeps this up. :-) We'll continue praying for strength and growth and healing!!!