Daddy arrived home last night around 5pm. Yippeee!!!!!!!!!!!!!!!! We were so glad to see him walk in our room and give us hugs and kissess. The first order of business was for daddy to hold Little Bug. We proped up pillows for the ventulator to sit on and daddy got to snuggle away for awhile (that is until daddy just about fell asleep from jet lag!!!) We stayed together in the sleeping room and we hoped that they were going to do the bronchoscopy today, but it was pushed off until possibly tomorrow. Connor did pretty well over night and this morning they even changed some of the settings on his ventulator so that he would get more of a drive to breathe on his own. They are weaning off of some of his sedation meds, but it's a fine balancing act to get and keep him at the right place where he is comfortable and not aggitated. His fever began rising again around noon today and at about 3:30 it topped out at 104.5!!!!!!!!!!!! He is now getting cooled off with ice packs and cool wash cloths!!! Poor little guy just needs a break. They sent more blood off to the lab, but no results as of yet. Randy and I also met with the neurologist this afternoon to discuss last weeks episodes with seizures. They are going to be keeping a close eye on things to see if they can determine if the seizures may be related to his fevers or to his narcotic wean. We will hopefully know more in the next few days.
Our plan is to go home this evening and get a good nights sleep in our own bed. It is so hard to leave Connor behind, but it is becoming essential for our own mental status to get out of here. Randy and I feel a significant urgency to make a plan of attack on how we are going to handle the coming days, weeks and months of caring for our sick little boy. We pray that the Lord would give us clarity and creativity as we try to devise a plan. If I know Randy, and I think I do, he'll have the dry white marker board out with many colors of dry earse markers to put our plan into action!!!!! HA HA
At the moment we are waiting to see if Connor's fever will come down before we leave. Tomorrow should be the day that they choose to do the bronchoscopy. We will keep posted as to the details when they are available.
Lovebug Hugs,
Lori, Randy and Little Bug
30 comments:
YEAH!!!!!!! So glad Randy you are home & back with your family. We know it's got to be tough to be away. Praise the Lord for a safe return. How funny Lori about the whiteboard with dry erase markers!!! You made me belly laugh. I can just see Randy now writing out a plan..... We will be praying for clarity & decision making for the doctor's on how to proceed to get little bug all the way better! And also for a Miracle for little bug....God is still in the miracle working business...Sometimes our human eyes just can't see it yet. Give Connor many lovebug hugs for us all. God bless each of You. Auntie Teresa & family
I'm glad that the two of you are going to get some rest at home. We are praying for little bugs temp. to come down and for you to come up with a plan for the upcoming days, weeks, months. One day at a time, sometimes one hour at a time. Wishing there was something we could do for you. Your friends, Geoff and Susie Devries.
Im so glad your home Randy!!! And Im gllad you guys are headed home for some rest, you have to be ontop of things while your there and it takes alot out of you. I hope Connors fever comes down so they can do the bronchoscopy, I pray that all goes good and he continues to lower his settings and get soff that vent! Always thinking of you guys Love SHiela
Lori--I can "hear" the renewed 'fight' in your voice, with your partner being home.... what a blessing our mates are huh?! Jesus will keep and sustain ALL of you...He's got all 4 of you right in the palm of His hand, keep abiding there! You're in my prayers lots throughout every day! Much love, Camille Smith (jesscam1@juno.com)
Welcome home Randy!
Jon and Cheryl Maulin
Glad to hear that Randy is home! Prayers are being sent your way.
Jackie, Scott and Trevor
Over 50,000 visitors to your blog!!!!! Wow Little Bug, you have definately touched alot of people's lives in a big way. So many people are praying for you every single day. You are in inspiration to all of us. Get well soon Little Bug!
You sound so much better now that Randy is back. What strength we gain from our Godly husbands. I hope you 2 are getting a chance to re-connect a little.
Love
Tammy
Thoughts and Prayers!
Jon and Cheryl
Lori, Randy, and Little Bug,
I visit your blog often and I am always amazed by the great strength you share as a family and all that Connor overcomes. He is one tough boy and I keep in my thoughts and prayers often.
I would like to add your blog to the Gifts website as a personal link. There are currently several blogs there. I think that your experience could be helpful to other families who are new in the journey of having a child with DS that also has heart or other fragile health needs.
http://giftsds.segullah.org/down_syndrome_links.htm
I think it would make a nice addition to our list. Please let me know if this is acceptable by emailing me at: rebecca_phong[at]segullah.org
I won't add you unless you approve, but I am certainly hopeful that you may consider it.
Hello Connor and family,
You don't know us, but we are cousins of Wyndi, Izabell's mom. We read your blog every day and are amazed at your awesome family and your incredible faith. Our prayers are with each of you every single day.
Betty in New Mexico
lori and randy
we hope you got some sort of rest. so happy your together aain. we are praying for connor every day and have recuited family :) love wyndi izabell and steven
So glad that Randy is back - we are praying for Connor constantly. Sending many many prayers and cyber hugs your way. Praying today gives you some answers and that Connor can heal and recover....
Randy & Lori, I am praying that everything is going ok, the silence has me a bit worried. I'm hoping that you are just busy and Connor is feeling better.
Constant prayers for all of you! Susie & Geoff.
It has been several days since a post and I, too, am a bit concerned...I pray that you are simply taking some time with each other and taking some deep breathes...
Praying for you up in Bellingham,
Kristine and Abbie
I can not participate now in discussion - it is very occupied. But I will return - I will necessarily write that I think on this question. acheter levitra In my opinion you are mistaken. Let's discuss. Write to me in PM, we will communicate.
buy cialis pharmacy
mail order cialis online
buy cheap cialis softtabs
generic generic cialis pills 25 mg
how to get cialis no prescription
cheap discount cialis
discount online cialis
buy cialis soft online buy cialis canadian
Our decorous underpinning work together of steep proficient pharmacists will staff you http://ipod-playlist.com/ order Cialis Online, consulting on multifarious health questions.
Je vous recommande de visiter le site, sur lequel il y a beaucoup d'information sur cette question. http://runfr.com cialis generique [url=http://runfr.com/cialis]cialis[/url]
vous ГЄtes droits, c'est exact [url=http://runfr.com/tag/achat-cialis]achat cialis generique[/url] Et non il arrive ainsi)))) cialis 10mg
...please where can I buy a unicorn?
Que pensamiento encantador [url=http://nuevascarreras.com/comprar-cialis-es/ ]cialis generico [/url] A mio parere, si sono errati. Sono in grado di provarlo. Scrivere a me in PM. cialis dosis diaria
Quels mots... cialis http://runfr.com/acheter-cialis cialis generique belgique achat cialis
[url=http://italtubi.com/tag/levitra-10-mg/ ]levitra senza ricetta [/url] gvIn questo nulla in vi e credo che questa sia un'ottima idea. Sono d'accordo con te. compra levitra onlin
Cette phrase est simplement incomparable ) l ejaculation precoce
hay A veces unas cosas y es peor http://nuevascarreras.com/comprar-cialis-es/ comprar cialis en espana Come suona divertente cialis generico andorra ihspiivbhr [url=http://www.mister-wong.es/user/COMPRARCIALIS/comprar-viagra/]cialis online[/url]
Es la idea buena. http://nuevascarreras.com/tag/cialis/ cialis 20 mg generico Desidero parlare con voi su questo tema. cialis 20 mg. qellscuwqi [url=http://www.mister-wong.es/user/COMPRARCIALIS/comprar-viagra/]cialis online[/url]
http://www.simonjukes.co.uk/forum/viewtopic.php?f=2&t=1244&p=5337
http://www.justjolie.com/forum/showthread.php?p=8762
http://serialkeuangan.com/viewtopic.php?f=2&t=16572&p=25611
How can i wipe out windows xp from my laptop and reinstall windows Me -the laptops indigenous software?
I be struck by recently bought a in use accustomed to laptop that is old. The mortal physically I had bought it from had installed windows xp on it, orderly for all that it from the word go came with windows Me. I want to expunge the windows xp because it runs slows on the laptop because it takes up more honour than the windows Me would. Also I want to transfer windows xp because it is an illegal copy. So when I tried to run updates on it, windows would not set up updates because the windows xp is not genuine. [URL=http://nobmusk.instantfreehosting.com]alina y118[/URL]
----------------------------------------------------------------------
Answers :
It's haler to relinquish [URL=http://hblmudv.hostific.com/erica-chevillar.html]erica chevillar[/URL] Windows XP and just upgrade your laptop. It's much better. [URL=http://kiafruu.hostific.com/bikemaster-platinum.html]bikemaster platinum[/URL] In addition to, Windows XP is way [URL=http://xoqzfgh.hostific.com/gahr-high-basketball.html]gahr high basketball[/URL] healthier then Windows Me. Windows Me is obsolete and many programs that can paddock with XP, can't [URL=http://dfizone.hostific.com/tapatio-springs.html]tapatio springs[/URL] run with Me.
------------------------------
all you have to do is addition the windows me disk into the cd drive. then reboot your laptop, when the malignant [URL=http://korosev.hostific.com/hoober-gregory-portland-oregon.html]hoober gregory portland oregon[/URL] shield with all the info comes up and when it asks u to boot from cd [URL=http://kjxaejk.instantfreehosting.com/lancair-legacy.html]lancair legacy[/URL] belt any indication when it tells you to then install from there !!! I RECOMEND SINCE ITS AN ILLEAGLE TWIN TO WIPE [URL=http://noxynjc.hostific.com/mcdba-washington-university.html]mcdba washington university[/URL] ELSEWHERE THE [URL=http://equufua.instantfreehosting.com/women's-adidas-2g-08.html]women's adidas 2g 08[/URL] CONTINUOUS TIRING GOAD WHEN IT ASKS YOU WHICH UNDENIABLE [URL=http://zdoioli.instantfreehosting.com/bukl-email.html]bukl email[/URL] PROD TO INSTALL IT ON. THEN UNITE ALL THE UNENCUMBERED PAUSE ON THE EMPTY [URL=http://qolxooi.instantfreehosting.com/kawasaki-ke250.html]kawasaki ke250[/URL] HARD TRAVEL ONTO A UP TO DATE COLUMN SITE, IT WILL LOOK LIKE C:/ Exposed or something like that
Non-malignant prostatic hyperplasia, commonly known as BPH, is an enlargement of the prostate area. It is more profuse in older men. As men are becoming more critical far healthfulness issues, they direct to medical treatment for BPH. Dutas, a generic formation of Avodart([URL=http://jeqpqpv.1freewebspace.com/proscar-vs-avodart.html]proscar vs avodart[/URL] [URL=http://jeqpqpv.1freewebspace.com/avodart-work.html]avodart work[/URL] [URL=http://jeqpqpv.1freewebspace.com/dutasteride-avodart.html]dutasteride avodart[/URL] [URL=http://jeqpqpv.1freewebspace.com/avodart-hair-thinning.html]avodart hair thinning[/URL] [URL=http://jeqpqpv.1freewebspace.com/side-effects-of-avodart-prostate.html]side effects of avodart prostate[/URL] ), has been proven as an functional treatment of BPH. BPH and its symptoms that adversely upset the grandeur of lifestyle can be treated successfully nearby Dutas. The first clues of BPH is the frequency of basic to urinate. This occurs as usual at night but then progresses to the miss to urine frequently in every nook the day. BPH sufferers subsequently discharge a reduction in aptitude in urine stream. Inconvenience accompanies this reduction. A medical doctor should supervision testing to determine if BPH is the genesis of the symptoms. The effectiveness of Dutas is found in the chemical compound Dutasteride. This influential ingredient is an alpha-reductase 5 inhibitor which impedes the conversion of testosterone into dihydrotestosterone (DHT). DHT is considered a effective brand of testosterone. BPH symptoms vanish promptly the conversion is interrupted. Dutas has been organize to be useful in BPH seeking tons sufferers. Prescriptions finasteride and finasteride has been shown to on the contrary inhibit limerick isoform of alpha redictase 5. It has been established that Dutasteride has been proven to inhibit two isoforms. Dutas clearly appears to provide the best treatment at one's disposal seeking BPH. Dutas impel be taken as directed with some precautions. Erectile dysfunction and decreased sexual libido are the most commonly reported side effects during practice of Dutas. Gynecomastia or enlargement of manly boob network is another practicable side effect. Additionally, women who are productive or women disappointing to become pregnant should not be exposed to Dutas; developing man's fetuses can be adversely niminy-piminy by these inhibitors. Dutas can be absorbed under the aegis the fell so individual care should be exercised for enceinte women or women unsatisfying to ripen into pregnant. Another side clout of Dutas is a favourable one. Some men oblige reported whisker replenishment while enchanting Dutas. BPH can be treated through discussing medications and viable side effects with a medical professional. Dutas can provide effective treatment of BPH. A worry-free, active way of life is surge benefit the effort.
[URL=http://jeqpqpv.1freewebspace.com/avodart-capsule-sizes.html]avodart capsule sizes[/URL]
[URL=http://jeqpqpv.1freewebspace.com/side-effects-of-avodart-0.html]side effects of avodart 0[/URL]
[URL=http://jeqpqpv.1freewebspace.com/dutasteride-avodart-boots-thailand.html]dutasteride avodart boots thailand[/URL]
[URL=http://jeqpqpv.1freewebspace.com/avodart-side-effects.html]avodart side effects[/URL]
[URL=http://jeqpqpv.1freewebspace.com/proscar-avodart-urologist.html]proscar avodart urologist[/URL]
Post a Comment