Tuesday, April 24, 2007

Still Holding On........

It has been close to 3 weeks that we have all been sick around here. Yesterday, Lori went to the doctor with a whole new set of symptoms.....Diagnosis......Sinus Infection!!!! Uuuugggghhhh....I honestly can't believe that we are not well yet. Thankfully Randy is feeling 90% better and Connor is on the mend. The doctor gave me amoxicillin to attack the infection so I am hoping to really feel better in a couple of days. We want so badly to experience the fun and exciting days of newborn times with Mackenzie, but unfortunately we are just surviving around here. I know we need to post more pictures, but quite honestly, we haven't taken any. I do promise that we will get on top of this and become more normal, but today is not that day!! Mackenzie is doing well, but she is exhibiting a great deal of fussiness and sleeplessness at night. We are praying that this turns around soon. So, we are still holding on to our sanity, but some days it feels like it is just by a thread. Thankfully, we know that this too shall pass!!!!

Connor had his synagist shot today to ward off RSV. He is such a trooper, he didn't even cry this time. The nurse said, "I don't know how you guys have raised him to be such a good boy, but I have never seen a child react so happily to a yucky shot like this before." I was so proud of him!!! If I could have, I would have taken him out for Ice Cream as a special treat!!! Speaking of ice cream or food in general for that matter, we have a special request. We are trying desperately to transition Connor from his feeding tube to eating by mouth. We want so much for him to enjoy food in his mouth and understand the connection of eating and feeling full so that he can get rid of this feeding tube and backpack. Now that he is becoming more mobile with rolling over, the backpack is becoming quite cumbersome and quite frankly, a danger too. We worry that he is going to pull the tube out completely and hurt himself. Last week we had to take him to his feeding tube doctor and we came up with a plan to give him more pureed food through his tube. This way he is getting more calories and his stomach is getting used to digestion, but we haven't addressed the issue of eating by mouth.

Connor has 2 wonderful therapists that work with him. One for physical therapy and one for oral therapy. We really want to be aggressive in this area, but we also know that Connor has developed some oral aversion that we have to conquer. Here in lies our request. We know that God has a special interest in Connor. He has answered so many prayers for our Little Bug and has intervened to save his life on numerous occasions. So we know that this is not outside of the realm of possibility for our God to answer this prayer for Connor as well. We know that God wants the best for Connor just like we do and that he can heal this eating issue. We would ask that you would join with us in praying for Connor to make strides with his eating. We are specifically praying that he would tolerate volumes of food instead of just tastes of food.

To many of you this may seem like a silly request because you have never dealt with a feeding tube before, but let me tell you, it is a BIG DEAL!!!!!! Each step that we take to getting Connor more normal in his behaviors is such a victory to him and to us. Thanks in advance for your support and prayers for this issue. We know that we have a big God and we trust that He can do this for Connor. We are looking forward to sharing the good news of answered prayer in this area soon.

Lovebug Hugs,
Lori

12 comments:

Anonymous said...

Hi Lori & Randy,
This is not a silly request at all. We all want to see Connor eating ice cream! Seriously we pray that he can get rid of that feeding tube way sooner than ever expected. Lord Jesus we ask for another miracle for this little bug. Lord we know you have an amazing plan for Connor's life! Lord we also pray for perfect health for the Robertson family and for sleep filled nights for princess MacKenzie so her mama and daddy can get some rest too! AMEN! We love you guys!
Love Sue & family

Bug said...

Hey guys Im sorry you’re still not feeling so great, but at least you are all on the mend (Thank God) And Connor is doing good with this cold, it’s always so scary when our kids get sick. And I can not even believe that he didn’t cry getting his RSV shot, he must be tough as nails. Skylar gets pretty upset, and cries BIG time. But Thank God he got the all clear from Dr Carter and didn’t have to have on this month (Yea). The feeding will come; does Connor like to put everything into his mouth? If no then try to get him to taste everything, toys, books, spoons, you know what I mean... Your great parents and with your love and support and all the prayers he gets he will get it. (I will pray for him) I can only imagine rolling over with the tube, and everything. So Ill have to pray he figures it out fast and likes it lots! I sure hope we can all get together this summer; we would LOVE to have you guys up for a BQ and some good old fashion visiting. Miss You TUNS but Love ya More Sheila

Auntie Teresa said...

You can count on our prayers! Love ya & hang in there.....a silver lining will come soon. Auntie Teresa

Hey little bug, way to go! Your so brave....I'm proud of you too...shots are No fun. Love you.

Izabell said...

said a prayer just reading this. I know that after all izzy has gone though when I prayed she would swallow liquids with out asperating i was praying to get the tube out, praying to stop pumping. this request makes perfect sense, a plee for him to eat, taste and enjoy food. To no longer have the backpack and tubes. Lori & randy you both are so strong and patient and we pray that connor gets stronger in all aspects of his life especially with eating. you have a wonderful therapist! We have never worked with her for feeding but she went out of her way to find Izzy a therapist when she did not even know us! She is a wonderful woman. you must all get along perfectly:)

Shannon and Carey said...

Hi guys.
I hope your colds pass soon. Then you can get back to normal. I'll be saying a little prayer for little bug about his eating. I hope you have a great day. Kisses to Connor and 'Kenzie.
Shannon in Austin

Amy Fields said...

I have gone down the the familiar road you speak of in the land of feeding tubes with Izzy. All the way from the NG tube down her nose to eating Happy Meals... I don't know if I have a ton of tips from those learning days but I would love to help if I can. Please feel free to ask!
Amy

Anonymous said...

I love you, Lori. You are a great mom.
Love,
Ruthie

The Janes said...

Mama Bug, Papa Bug, Little Bug and Little Ms. Lady Bug - oh that's Lori, Randy, Connor and Mackenzie - We have always had you in our thoughts and prayers and have enjoyed your Blog. And YES YES YES -- you can count on us for the support and prayers for Connor to eat. And we pray that you all get well, stay well and get Mackenzie to sleep nights ~ for her and you! Love The Janes <>< xo ox

Jo Ann Collins said...

Not a silly request at all!! I can not imagine all you have gone through and the challenge you have to transition from the feeding tube to tasting ice cream:) But you have all this wonderful support from those blogger friends who have been where you are and know exactly the challenges. Let their success in these matters be an encouragement to you. We pray for good health for all, for Connor to conquer the oral aversion and for the baby bug to sleep better at night. After all the miracles God has done for all of you, this is not too much to ask for. Love to all, Jo Ann

Anonymous said...

Lori and Randy,

We will continue to pray for all of you. We really hope that Connor can transition faster than Christopher has. We will keep up the prayers. Please let us know if there is anything we can do to help. At 3 1/2, Christopher is FINALLY mocking us eating. He has always had to do everything backwards :) We will surely continue our prayers on your behalf. We hope that you all are feeling better soon. Connor, there is soooo much yummy stuff that your Mommy can fix for you. Hope you get to investigate all of that soon! :)

Steph in Il

Princess Morgan said...

Geesh! I hope you all feel better soon. Connor will be in our thoughts. We know he will continue to amaze us all. Enjoy Miss Mackenzie. They sure don't stay little for long.

Bug said...

Hi guys its been a few days and I thought I would drop in to see if everyone is feeling better yet. I hope so. Its going to be a beautiful day and I hope your all able to enjoy the sunshine. Big Hugs Sheila