Fever Broke!!!!!!!!!!!!!!

Praise the Lord for answered prayer. Today was a positive day for Connor. The fever came down to around 99.5 for the majority of the day. He had a couple of episodes early this morning, but after that he was happy and peaceful and off the c-pap until 7:oo tonight. He enjoyed his visit from Auntie Kathy, cousin Kacie and Grandma R. Everyone had their turn to hold and snuggle him and he loved every minute of it.

Our meeting with the docs was very revealing today. The pulmonologist came in with the head cardiac doc and we had quite a discussion about Connor and his present condition. In short, the decision was that this has more to do with Connor's lungs than with his heart. Apparently, Connor is doing something called "air trapping". This is where he takes a breath and without exhaling takes another breath on top of it and then another still. His chest and heart area are enlarged because he is over-inflating his lungs. They plan on changing his current diaretic medicine to a new one and discontinuing one of his antibiotics in hopes that his fevers may cease. They will then begin to give him powerful steroids to bring down the over-inflation and give him some relief. We are so hopeful that this may get to the bottom of his lung disease and bring Connor some peace in his breathing. We are thankful that the docs had new and fresh insight today and that we have a new course of action. We are concerned about the steroid (prednazone..sp???) and we hope that this is not a lifelong course we will have to follow with Connor.

Just before coming up to write the blog Connor slipped into another episode and his temp started rising again. He had a decent sized blood clot come out in his poopy diaper and they are going to check that out now as well.

Dear Lord, please stop the cycle. Allow Little Bug to feel the relief that he felt at the beginning of the day and hold him close to your heart.

Lovebug Hugs,
Lori