Well, it has been 12 days since our airlift back to Children's and it looks like we are heading out of here tonight. The docs ok'd us to go home and wait for our surgery date, which by the way is September 7th. Our instructions are to stay as healthy as we can, keep away from germs and any other dangerous intruder to Connor's health and to rest. I just met with the home health care company to receive my education on the monitor and oxygen supplies we are going home with. As hard as I tried to keep "home" a place that was free of medical and hospital supplies, I lost the battle as it is essential that Little Bug gets a little extra oxygen every now and then. I keep reminding myself it is only for 3 weeks and then the next time we come home it will hopefully be free of hospital stuff!!!
We were pleased to get on the surgery schedule, but disappointed we had to wait. We understand that the hospital is crazy busy this time of year and we pray and trust that the wait won't be too long for Connor. It is absolutely essential that we keep him in prime shape, because another trip back to the ER would be a horrible setback for Little Bug. This is where we need to concentrate our prayers. Lord we pray a perfect hedge of protection around Connor over these next 22 days until surgery. Keep him in stable health and prepare his little body for the surgery that he will undergo. We trust you to answer this prayer regarding Connor and we again stand in faith waiting with all hope for a mighty miracle on his behalf!! Amen
Today's Gastric Emptying Study in the nuclear medicine department went well. They determined that there was no reflux or micro-aspirations and his tummy emptys just fine. Good news, yes! But it does lead to further evidence that Connor is definately in Congestive Heart Failure. The cough and the gagging are more than likely signs of pulmonary ademea rather than the reflux like we thought. There still is no word on getting him help with the "pooping" problem but we are trusting that maybe even that will improve once is little heart is fixed.
Your encouragement and prayers over the past week has been especially helpful to me as I have really been in a low place. Thank you for your concerns and kind words!!! I can't wait to sleep at home tonight and wake up in our own house!!!
I'll post from home tomorrow with an update!!! Thanks for your prayers.
Lovebug Hugs,
Lori
9 comments:
Ill pray that you guys all stay well for the 3 weeks!!!! I hope you got the O2 Concentrator, it is so much easyer then the tanks. Love You Guys Sheila
We are so thankful that you get to go home today and that the surgery date has been made. I know that you didn't want to wait until then for the surgery, but we need to remember that God's timing is better then ours. We all have to believe that this timing is best for little bug. We continue to pray for all of you. I hope to come and visit you one day next week.
Praise the Lord! You're heading home! Praise the Lord! You have a surgery date. I know you wanted to have this settled earlier, but I have to believe that with all of the prayers for Connor, God's perfect timing is in place. I love you all!
Heather
Enjoy home, friend. I'm sorry this has been so difficult, but know that beauty is in the midst of it all.
Love,
Ruthie
So glad you all get to go home! God is so good that He has kept Conner strong all this time and allowed him to grow & get strong before having to have this surgery! You have been so good to post all the evidence along the way of God's healing hand at work in little Conner. Thank you for your faithfulness in that. Know that us out here in blogger land will be praying for Conner's continued safety & that hedge of protection around him! May you sleep so good tonight & know that you are loved!
Love you all,
Chris & Lisa
Hip, hip hooray~Connor and Lori are home today!!!!
We are praying for the next 22 days to be filled with extra healing, extra strength, and extra rest. Please let us know if we can be of any help to you other than our prayers.
We love you,
Auntie Heather, Cousins Olivia and Bergen Luke
P.S. Hopefully our guys are catching plenty of salmon to fill our deep freezers. This will make staying closer to home a lot easier.
Hi Lori,
We are so happy that you get to go and get some rest in your own bed. Lord we lift up Connor to you and give him a sound sleep tonight so his mommy and daddy can get caught up on some rest. We pray for restoration and healing in his little body so he can move forward with this surgery on the 7th. We know that you are preparing now for that special day and guiding all the physicians and his mommy and daddy too. We thank you Lord for your promises and many blessings and I ask that you continue to pour out your peace and comfort to this wonderful Godly family.
Love
Tammy
Awesome! What a wonderful God we have to finally let the surgeons realize the importance of the surgery. We are rejoicing with you. We will continue our prayers that God will keep Connor growing in health. I realize you want it to be now, but this extra time with the oxygen at home away from all the extra hospital germs may give him the extra boost Connor needs to heal from surgery in a more timely manner. God knows our every need and cares for us in just the perfect way.
We look forward to more great reports.
Love,
LeeAnn
A little p.s. from LeeAnn. Get Connor real healthy the boys are looking forward to bringing out here in a few years and taking him on all the crazy Knotts rides they just did. Excelerator where you begin the ride at 0 - 80 in 3 seconds and climb into a huge twisting drop. Or the Silver bullet, where you hang upside down as you ride at speeds of 50+ miles. So get that little bug ready to fly the Webb boys are ready to teach him about the crazy rides.
:) TEE HEE
Love Ya,
LeeAnn
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