Thursday, November 09, 2006

Wind out of our sails............

Just when we thought that life was great and we were all home and healthy, we are finding out that Little Bug is still having trouble. Oh how quickly the wind is taken out of our sails......UUUUGGGGHHHHH!!!!!!!!!!!!!!!!! We weren't home more than 6 hours when Connor began having his extreme spells of discomfort and now it's 3:33 am and we have hardly slept at all. Between painful cries, a flair up of MAJOR diaper rash and extreme gagging and wretching, Little Bug is just flat out having a rough time. We can't believe how quickly things change every single time we bring him home......We don't know what to do......We're praying, but somehow, we are feeling no comfort from even that......We are holding and comforting him and that doesn't seem to do the trick either......There is GREAT frustration in the Robertson household in these wee early morning hours........We just don't know what else to say......except that we can't believe this is happening.....AGAIN!!!!!!!!!!

Lovebug Hugs,
Lori

20 comments:

Anonymous said...

hang in there - we're still praying for Connor and all of you. he's gonna be one tough little bug when he gets past this part of the journey. God bless, aj

Bug said...

Oh man guys, He was doing so great, there cant be that many changes from the hospital yesterday and being home now. I cant imagin the frustration, I can only pray for Connor and you two. Hang in there, maybe its just a little spell and it will pass soon! Bug Hugs Sheila

Anonymous said...

Oh guys - what in the world?! I just jumped on the blog to look at his cute little pictures again and oh, I never expected to be hearing this! I will be praying my heart out. I am so sorry! Let us know whats happening. Rhonda

Heather said...

Dear Jesus, We bring Connor to you once again. We hold him before your throne and pray and miraculous relief and healing in his tiny little body. I pray for peace and health and rest in the Robertson home. May they feel your presence so strongly. Give them wisdom and discernment as they face each moment with Connor. Bring healing I pray.

JoAnn Collins said...

Oh guys, I too, just clicked on the blog to look at the sweet pictures again and was so sorry to see things did not go well during the night. It is hard to see how things could change from doing so great at the hospital & now home where we had hoped you could all have a time to rest & recoup from the hospital stay and have it turn around so quickly. How I wish they could get at the cause of all this "tummy upset" Back on the prayer bones to lift up our dear friends to the Lord for strength for yet another set back. May this be just a short episode as Connor gets adjusted to being home. Love and prayers go out to you. Jo Ann & Rip

Anonymous said...

Perhaps Little Bug is just not used to being at home yet, even though it is "home". Maybe it will take alittle getting used to. All babies seem to get really upset when they are moved to a strange place. Perhaps it will take him a day or two to get familiar with the home again.

Lorrie Walker said...

I want to grab on to Jo Ann's word, "adjustment". I was thinking just that before I read the comments. As I've said before, as an R.N. who has been thru some of this stuff with families over the years, even tho you think being home will be good, and even tho you think you're being calm, sometimes there is a bit of nervousness that you don't even know is there, but Connor feels and his body reacts to.It's just a thought, but I've seen it happen.Even tho being home is a GOOD thing, it is still an adjustment for LittleBug, and I pray that it will all level out soon and settle into more of what you had hoped for.Try hard to take turns and each of you get rest---sleep deprivation can be a real enemy, as you already know.
Just re-read this & it sounds a little "preachy"!! Hope you know it comes with love & prayers beyond measure.IT's just the nurse & mother in me coming out.PRAYERS, PRAYERS,PRAYERS for all of you. Lorrie Walker

Bug said...

Lori and Randy it was good to talk with you guys today, I hope Connors Dr apt went well and maybe you got some good answers!!! Ill keep you all in my prayers as Connor adjust to home life, I think alot of it is he isnt use to home, as sad as that sounds, it might take him a little bit to get use to his new saroundings. Hang in there K Love Ya Sheila

Izabell said...

lori, we are praying and hoping connor feels relief soon. love wyndi

Debi said...

I am sorry you had a rough night short on sleep, long on discomfort...I hope things have settled a bit..some adjustments for all....

Hugs to your Little Bug

Debi

Anonymous said...

Randy, Lori and Little Bug...I lift you all up to the Lord today. May God bring you comfort and blessings today. Conner will be just fine...with God in control...he will. Those pictures from yesterday are so cute. He is just adorable...you should be so proud of him. After all it is so frusterating, but he's come so far!!

Anonymous said...

Randy, Lori and Little Bug...I lift you all up to the Lord today. May God bring you comfort and blessings today. Conner will be just fine...with God in control...he will. Those pictures from yesterday are so cute. He is just adorable...you should be so proud of him. After all it is so frusterating, but he's come so far!!

Anonymous said...

OOPS!

Anonymous said...

Randy, & Lori,
My how things change so quickly for you. We pray for just as quick of a change for the better. Jesus, we lift up Connor to you, Lord we ask that you give this little guy absolute relief. NO MORE PAIN IN JESUS NAME! Lord, restore his little body and restore rest and peace to Randy & Lori. These things we ask and believe in your Mighty Name. AMEN!
We love you guys!
Love,
Sue & family
P.S. the pictures are ao cute. He looks great!!

Kristine and Abbie said...

Lori and Randy,

Prayers for Connor are being lifted up...Lord, may Connor simply get to be at home wrapped in the loving arms of his mom and dad...God, please relieve the pain and help him settle into life at home!

Love,

Kristine and Abbie

Teresa Denessen said...

Oh Lord, Bring encouragment & comfort to Lori & randy even now I pray. Relieve Connor from whatever discomfort he is feeling. Guide & Direct his parents knowing full well that you ARE with them every step of the way. Reveal yourself to them & bring the "peace that passes all understanding". I pray that Connor has a good night's rest tonight. AMEN

Know that we are lifting you UP in PRAYER!

hoping for a way better night tonight. Love, Teresa & Family

Anonymous said...

I am a friend of a friend who keeps track of your little bug's progress. Those going home pictures were so uplifting! I'm so sorry to read the update that Connor is hurting again :-( Could something in the house be causing the issues? Maybe he's allergic to something? I don't know...just throwing that out there.

I hope you're able to get to the bottom of it and/or Connor settles in at home for good asap.

Cookie said...

Sending hugs and prayers your way. Don't lose your faith now dear ones, its brought you so far. We're all thinking of you, in many places you have never been. Jan/ME

LeslieAnn said...

Thinking of all of you...and hoping this is short and that Connor is better and home for good soon. We follow your story every day and pray for Connor always.

Leslie & Jack

Anonymous said...

We are so sorry to hear of such a disheartening night! You are in our prayers and thoughts.

Like some of the other bloggers, I am wondering if part of the problem could be that, sad as it is, the hospital is home to him. Babies are major creatures of habit and find routine soothing. Maybe at night your house is too quiet or dark or doesn't smell right to him. With Little Bug being so fragile, stress can quickly tip the scales into a major episode and chain reaction of physical problems. Perhaps try some white noise in his room (like the hum of hospital machines), a radio in the background (like talking voices at the nursing station), more light, etc, etc.

Additionally, Connor probably hasn't had many opportunities to develop self-soothing skills. I imagine at the hospital he would get sedated when upset, so this might be a learning curve for him. Unfortunately I am sure it is a delicate balance because his little body quickly loses balance under stress.

My apologies for the unsolicited advice, but the psychologist in me can't help it! Please know I think you are doing an AMAZING job. We are praying this will just be a minor adjustment bump in the road and not the development of more pain issues.

All the best,
Susan Milliren (Jason and Tyler send their love)