Monday Evening Update

This is day number 3 of this admission to Children's Hospital and we are making slow progress. Little Bug struggled again last night and had a very difficult time finding rest and peace in the midst of spiking fever after fever and fighting the c-pap machine. This morning was equally as hard for him and finally a little after 9am he surrendered to sleep. After waking from his morning nap he had a busy afternoon of tests and blood draw attempts and an echo-cardiogram. He tolerated all of these intrutions fairly well except for the afternoon spike of 104.7 with his temp. Dr. Badden (our favorite ICU cardiac doc) was finally able to get blood from Connor around 5pm. They sent it all to the lab for many tests and we should know preliminary results sometime tomorrow. They are still stumped as to what is going on both with the fever and with the GI complications. Late this afternoon I requested that they give Little Bug a trial off of the c-pap to see how he would do. That was around 3:45pm and he is currently still off and very comfortable with his breathing and oxygen saturations. Praise the Lord for this, I know God is answering our prayers for Connor. Since his spike in temp this afternoon he hasn't gone up again so he is quite happy at the moment with no drugs on board to help him settle down. We are hoping for a positive night for him with much rest (and for mama too!!). Tomorrow we should hear from the GI specialist to find out what to do next and how to proceed with this particular problem. After they decide what is making him spike the fevers we should be able to treat him and hopefully go back home.

Thank you to Dad and Mom M. for helping with Abbey over the weekend. She is now in the very capable hands of our sweet neighbor's Dave & Lisa. Thanks guys for being willing to help out while we are up here and Randy is gone. Abbey says thanks too and so do the flowers!!! You guys are great!!!!

It was nice this evening to be able to hold Connor for the first time since very early Saturday AM. I realize when I can't snuggle him how very much I need him in my arms to love and protect. While we were snuggling tonight we got another call from Daddy in Germany. He was so glad to hear that Little Bug was off the c-pap and in my arms. He is scheduled to be home around this time next week and we hope he finds us back at home and not still here at the hospital.

I will post more tomorrow evening with an update and hopefully we will know a better plan for heading toward home. As always, if anything happens before that I will post an update so you can be praying more specifically.

Thanks once agian for all the love and prayers. Our Lord is hearing and answering and Connor is looking some better as of this evening!!!!

Lovebug Hugs,
Lori