Friday, October 27, 2006

Round & Round The Mountain We Go.......

Connor is still having a difficult time waking up from all of this sedation. We won't be off of the morphine and ativan until the 3rd of November and I am hoping that it will make a significant difference in Little Bug's ability to be alert. I met today with one of the lung doctors who is, quite frankly, stomped by Connor's inability to get his lungs stronger. The pain management team will be by later this afternoon to talk about possibly weaning the new drug Clonidine as well. We just have to get Connor more awake so we can see the true state of what is going on in his body. Unfortunately, Connor is traveling in a nasty little cycle of events......More aggitation, then more sedation, then more diuretics, then more need for supplementing sodium, potassium, electrolites, then he can't keep his co2 levels down......YIKES....................It's horrible for him, because we are not making strides into new ground, we just keep going round and round the mountain. The pulmonologist said today that unfortunately, Connor shows all the outward signs of respitory failure, but somehow he compensates and tolerates it. They're not quite sure how he is doing it, but we know this can't go on forever. Please continue to pray. I'm not even sure how to pray at the moment, but I know that outside of God's healing touch upon Connor's body, we aren't going to be going home any time soon. Please ask God to touch Little Bug in an entirely new and fresh way with His healing hands.

Thanks for your prayers,
Lovebug Hugs,


Izabell said...

lori we are praying for all of you. we will stop by and see you soon! hold him and give him some loves form izabell. we love ya! if you need anything please call.

Bug said...

Yikes guys... Well we will be praying that his wein goes good, and as he comes off the drugs his lungs do better... Ya know that morphine relaxes the resp muscels... So Ill pray that it all goes well and he has no complications and the he comes out of respitory failure. Bug Hugs Hang in there guys, he is a fighter Love SHeila

Uncle Randy said...

Hi from Uncle in Cincinnati with cousin Corey. Many prayers for Connor and his Mom and Dad. Continue to trust. We all love you a bunch.

Jon and Lori said...

Hi Lori and Randy,

I have finally had a moment to actually write you a quick note. Little Connor is just beautiful. He has been in our thoughts and prayers since the fortunate day we met you. We hope that you and Randy are doing as well as you can. I ask Olivia every week I see her how her cousin is. She always has that sweet smile when she thinks of Connor. We are at the family farm this week-end to celebrate Ian's 2nd birthday. We have already reached the terrible two's. Keep the faith as I know Connor and Ian will meet someday and share their stories. You take care and know that you are in our thoughts and prayers. Lori, Jon, Ian and brothers (Alex, Isaac, Andrew)

Cookie said...

Dearest Lori and Randy,
Prayers continue across the country for your strong littlebug, he is truly an inspiration. Give him a moosehug from Maine for me. Jan

Susie - Maggie's Mom said...

Lori & Randy, We will continue to pray for Connor's lungs to heal - hopefully all the medications will be out of his system in the next few days and he will be breathing better on his own without aggitation or trouble. Just hold him close and love on him, he feels you and knows you are there. I just want to pinch those cute little chubby cheeks. :) Stay strong Connor!!

Anonymous said...

Lori and Randy
You know the one thing that hit me and really stood out in my mind when I read this last blog is this: the fact that the docs are stumped on the fact that connor's body is able to compensate for the respitory failure and not sure how he is able to do that? You know, this just reminds me of the fact that Connor has already been labeled as an OVERCOMER, so keep holding onto that promise

Aunt Kathy said...

Lori and Randy
I want to share with you my devotion for the day. It's called... What Now? 2 Chronicles 20:1-17
During threatening times of disruption and change, we need to ask, "Lord, what do you want to do with this moment?" God told the king and his people: "Do not be afraid nor dismayed. . . ., for the battle is not yours, but God's. Tomorrow go down against them... The Lord is with you" (vv.15-17) In stressful, confusing situations, we might ask a worried "WHAT NOW?" But if we look to the Lord and trust in His care, our fear will be replaced with peace. -David McCasland

O Lord, whenever we're afraid,
We'll put our trust in You
To lead, protect, and guide our way,
And help us make it through. -Sper

Lord I pray right now for the peace that passes all understanding. Lord, I pray that in this confusing time, that you will wrap your loving arms around Lori and Randy and give them the assurance that you are in control. I especially pray today for Connor, that his lungs will be healed and that these episodes of aggitation will be gone. We know that you, Lord are the great physician, healer and that you are the miracle worker. We ask for a miracle right now Jesus name. Thank you Lord for what you have done and will continue to do for Connor, Lori and Randy. Thank you for their willingness to be open and honest with what they are going through. Be with them in a very special way today and that they will feel your presence in that hospital room. Thank you Lord for hearing and answering our prayers. Amen....

I Love you guys and will continue to pray. Know that my heart is with you daily. Give my sweet nephew a big kiss and whisper in his ear, that I love him lots & lots. I will see you soon. Hugs Aunt Kathy

Kelly said...

Lori & Randy,

You don't know me. I am a Mom to a 15 month old boy named David who also happpens to have Down Syndrome. I recently came across your blog again and just wanted to let you know how much your story has touched me. I am in awe of your strength and courage. Your love and pride for Connor shines through in all your photos and words. Despite everything he and you all have been through, you have maintained amazing grace and fortitude, which most others, including myself, could only wish they have half as much if faced with the same challenges.

I am not the praying type, but latey I have been saying a lot of prayers for Connor. He has been through so much and my heart just breaks for that. I know you want nothing more than to have him home and in your arms. He is a fighter. He has overcome so much. I know he will get through this. I trully believe there is an extra fighting spirit in that extra chromosome our boys have.

I will be thinking of you all and praying for some answers from the doctors, for speedy healing and for that precious boy to be home in your arms very soon!

Anonymous said...

Connor is a fighter and a warrior for Christ. God promises to answer the cry of our hearts when we call out to Him. Do not delay, oh Lord! Bring your answers and show Lori and Randy the clear path. Lord, you alone are the great Physician.

JoAnn Andro and family

Jon and Cheryl said...

Prayers and hugs to you all.

Camille said...

Lori, yesterday in church we were praying and my heart was again burdened for Conner. We sang some older choruses and one of the verses from "There Is None Like You" just stood out to me. This promise is for Conner:

"Your mercy flows like a river wide,
Healing comes from your hands.
Suffering children are safe in Your arms,
There is none like You"

Keep holding tight to your Anchor, prayers for Conner are never-ending!

~Camille (Jess Smith's wife)

Izabell said...

we are praying for you all and hoping conner is holding his own and showing everyone how strong and amazing he is.

Bug said...

Hey guys I was just hoping you had all had a prosperous weekend, and that little bug is improving. The 3rd isnt to far off :) Big Bug Hugs Sheila and Sky