Mama's Intuition Wins!!!!!

This morning started out with the news from the docs that, "Connor looks great....we're taking his central line out and we're sending him to the floor today!" When I called down to the room and Randy gave me that news, my initial reaction was....WHAT?????????????? I had a significant gutt feeling that today was not the day to be moving Connor. I rushed to get dressed and get down to his room to speak with the "team" about their decision. I told them that I didn't feel good about the decision and that Connor needed to prove himself for a longer period of time in our estimation. The docs re-evaluated and said they would spend one more day watching him. Sure enough after a great morning and snuggling with Auntie Teresa and Grandma R., Little Bug went balistic!!! He freaked out for about 3 hours and after 2 doses of Morphine and Ativan he finally started to mellow, but only for short periods of time. His temp shot up to over 103 and they had to do the routine blood draws. This became difficult because they had removed his blood draw IV line earlier in the day, so he got multiple pokes in the arm and head. I think we scared Grandma R. right out of the room. Little bugs heart rate escalated to 202. His respirations went sky high as well and he ended up back on c-pap. Just now about 8:30 his temp is coming down and his numbers are looking better. Whew.....what an afternoon. When the docs came in they said, "Boy, I'm glad we didn't send him to the floor today!" I guess Mom's really do know what's best. Even Randy agreed that this was the best decision.

We didn't find out anything new today regarding the seizures. They hope that the new medication they started him on will stop the seizures. We didn't see any evidence of them today so we are grateful that the meds are working on his behalf.

This afternoon took a lot out of Connor and he looks wiped out. If there is a consolation to be seen in any of this, it would be nurse Amy!!!! Oh my how we love nurse Amy. We occasionally "catch" her kissing on Little Bug and loving on him in the most adoring ways. When she touches him she touches him with love and care and skill all at the same time. If we could hire her to be our full time nurse we would!!!! Go nurse Amy!!! She agreed with our concerns for Connor that his belly seems to be hurting him. Together we discussed that maybe he's getting too many calories in efforts to fatten him up and maybe it's causing him distress. We will be re-evaluating this very subject with the dietician tomorrow. At the moment his feeds have been stopped and he is getting IV fluids so that he doesn't get dehydrated.

I forgot to mention in yesterday's blog that they moved us again. Yep, that's right. We made move number 12 yesterday after Connor's EEG. I think we must be on the "stay in every room plan" here at Children's. It's actually becoming a bit of a joke around here that we need to wear roller skates because you never know when were moving next. I guess we are learning flexibility in more ways than one.

Yesterday was also a particularly hard day because the Lord saw fit to call another sweet baby into his loving care in Heaven. Little Jackson Stone passed away yesterday afternoon and our hearts greive with Paul and Tiffani, his parents, as they find some way to say goodbye to their precious son. Please pray for this dear sweet family in their loss. Baby Michael is also still fighting and his parents are such troopers. They need continued strength to make decesions and plans for their little miracle as well. How we all need a special touch from our Lord and grace to make it through each moment of every day. Your continued prayers on our behalf are upholding us and lifting us up daily. We feel strength because we know you are praying. Thank you for being the army of God on our behalf.

Goodnight and Lovebug Hugs,
Randy & Lori and Little Bug