Friday, May 05, 2006

Sleepy Bug.....

Happy Cinco de Mayo!!!!! I have always loved this day as it is a good excuse to make a great mexican fiesta for dinner. Not the case this year. Randy and I did enjoy a good taco salad for lunch in the cafeteria though, so all was not lost.

Connor was Mr. Sleepy Bug today. They told us that one of the initial side effects of his new anti-seizure medication would be sleepiness. I guess they were right!! He slept most of the day today and he was on the c-pap the majority of the time as well. For some reason he couldn't keep his oxygen levels up where they need to be on his own, so they felt it best to go back to the c-pap for the time being. He had one episode this morning and the docs decided to start giving him small, scheduled doses of Ativan to try to stay on top of these outbursts of pain. Thankfully we have gotten the docs to admit they believe it's pain. So tomorrow is another day and we will hope for increased progress for Little Bug.

Daddy went back home today to mow the lawn and get the house in order. He will leave again on Tuesday for his next "stage" in sandland with his squadron out at McChord AFB. We always hate to see him go, but he is so faithful to be available for trips that he needs to make for his squadron. Randy is such a hard worker and we are so blessed that he is taking such good care of everything while Connor and I are not able to be home. Thanks honey for being such an excellent team player. You and Abbey have fun tonight at home and know that we miss you and love you!!!! Hey, by the way we also want to say thank you to our wonderful neighbors and family that have stepped up and agreed to help out with Abbey while we are here at Children's and while Randy is gone on his trips. Thanks so much for lessening this load for us right now. We owe you all a big thank you. And hey, how 'bout this, let's do a big cook out when we all get home to say thanks for watching Abbey!!!! That's a great idea...Hhhhhmmmm, I can already taste the burgers and dogs off the grill!!!

Wasn't it a beautiful day today?? Grandpa and Grandma M. came for an afternoon visit and it was so nice to have a visit and watch the wind blowing through the trees outside of Connor's window. After they left, I went for a short drive down to Matthew's Beach. I walked around for a while and took in the fresh, clean air and took advantage of a warm evening. How I prayed for Connor durning that walk and asked the Lord to give us another warm day soon that Randy & I could stroll together with Connor in our arms. It is always a reflective time for me when I get to be outdoors. Don't you ever wonder what it must have been like to be present at the moment of creation when God was creating plants, trees, animals, bugs, landscapes and so on. We have the most creative, amazing Heavenly Father. He knew from the beginning of time that His people would need beauty to surround them and that that very beauty would bring them closer to Him. I just think that's delightful that God thought of us in that way and had us in the palm of His hand from the very beginning of the world. Although my mind is skewed with doubts and fears at the current moment regarding Connor and his future, I know that the Lord of all creation sees me, and holds me and provides for my every need. Thank you Lord for your beautiful, spectacular love for me. Thank you for showering me with your daily grace and mercy. How very lost I would be without your guiding hand and loving touch. The wonder of your love is amazing and I am forever changed because of the way you care for me. Thank you for holding Randy and I and Little Bug close to your heart. Cradle us in your grip this evening I pray and give us new strength when we wake up tomorrow.

Goodnight and Lovebug Hugs,
Lori

9 comments:

Anonymous said...

Lori,
I am glad to hear that you had some down time this evening at the beach. IT is so incredible to hear what is going on in your mind while you are in these reflecting moments. Thankyou for being so transparent and honest about your feelings are for being so faithful to this blog thing. Your words are constantly impacting all of us. James just said to me again, "she is going to write a book!" God has sooo much in store for you and your family. You have been through a lot but you have always came out a stronger person each time and so will Connor.
Love
Tammy

Tara Blanchard said...

I'm praying that prayer with you tonight Lori, and I will pray a special covering of prayer while Randy is away.
I'm glad that you were able to get out in the sunshine today, to refect and refocus. Connor and Randy are SO blessed to have such a faithful and loving mother and wife in their lives. God is doing wonders through you. Keep your chin up, and your hopes high. Rest well tonight.

Your sister in Christ,
Tara

Tanna & Kenny McGill said...

Lori,
You are an amazing mom and an amazing Christian. Your faith and trust in God is in inspiration to us. We pray for your family and Little Bug daily and we just know that God has a wonderful plan for all of you. You are such a strength to other families at Childrens and God is using you in awesome ways to comfort and witness to these families in need. Just know that when you are feeling weak God will be your strength. God bless you all.
Tanna & Kenny McGill
Shelton

Anonymous said...

Lori, your beautiful spirit is such a blessing and inspiration as well as your willingness to be so transparent. I'm sure that everyone who reads this blog is lifted and encouraged by your faith and love of the Lord. What a testimony you are!

I heard an uplifting quote by Joyce Meyers recently that I would like to share ~ "God is not telling us not to fear when He says, "fear not", but rather not to bow down to it." Then she shared this quote, "do whatever God calls you to do, even if you have to do it afraid." I think these are such great words of wisdom, which helps to lift off the burden of our humaness and places our circumstances in proper perspective.

May you continue to feel the comfort of being cradled in the palm of God's hand and see your darling little Connor become completely well and whole. Our prayer for you is that you and Randy are sustained with the strength and all sufficiency of our Lord, in the days ahead.

Thanks for being such wonderful examples of faith.

Blessings,
Judy

Debi said...

Wow...sounds like your little bug had a sleepy day...I am glad you got to enjoy your salads....and that view from your window...
I pray for a peaceful weekend with Connor...

Blessing ...

Hugs to your Little Bug..

Debi

Debi said...

Wow...sounds like your little bug had a sleepy day...I am glad you got to enjoy your salads....and that view from your window...
I pray for a peaceful weekend with Connor...

Blessing ...

Hugs to your Little Bug..

Debi

Debi said...

Wow...sounds like your little bug had a sleepy day...I am glad you got to enjoy your salads....and that view from your window...
I pray for a peaceful weekend with Connor...

Blessing ...

Hugs to your Little Bug..

Debi

Anonymous said...

Lori,
What a beautiful picture you have left in all of our minds about our Lord's creation and His amazing love for us! Thank You for encouraging us today in the midst of everything that is going on in your little family. I think we take so much for granted and forget to just sit back for a moment and reflect on the beauty of what Jesus has given us and what He has done for us. We are lifting you up in prayer daily!
We love you three soooo much!
Love,
Sue & Randy

Auntie Teresa said...

Randy & Lori,

The kids & Ted just went over to the new shop. He is all moved & I have a minute with no interruptions!!

So hoping that Connor had a good day today & we continue to lift him up in prayer daily. Give him a big hug & kiss for me and tell him his cousins are asking to come see him!!....

I am thinking escpecially of Mothers day coming up and am praying for many miracle's for next week for Connor. You Lori are an amazing woman & mother.

All our Love to you Lori, Randy & especially our adorable newphew "little Bug"!!!