Sleepy Bug.....

Happy Cinco de Mayo!!!!! I have always loved this day as it is a good excuse to make a great mexican fiesta for dinner. Not the case this year. Randy and I did enjoy a good taco salad for lunch in the cafeteria though, so all was not lost.

Connor was Mr. Sleepy Bug today. They told us that one of the initial side effects of his new anti-seizure medication would be sleepiness. I guess they were right!! He slept most of the day today and he was on the c-pap the majority of the time as well. For some reason he couldn't keep his oxygen levels up where they need to be on his own, so they felt it best to go back to the c-pap for the time being. He had one episode this morning and the docs decided to start giving him small, scheduled doses of Ativan to try to stay on top of these outbursts of pain. Thankfully we have gotten the docs to admit they believe it's pain. So tomorrow is another day and we will hope for increased progress for Little Bug.

Daddy went back home today to mow the lawn and get the house in order. He will leave again on Tuesday for his next "stage" in sandland with his squadron out at McChord AFB. We always hate to see him go, but he is so faithful to be available for trips that he needs to make for his squadron. Randy is such a hard worker and we are so blessed that he is taking such good care of everything while Connor and I are not able to be home. Thanks honey for being such an excellent team player. You and Abbey have fun tonight at home and know that we miss you and love you!!!! Hey, by the way we also want to say thank you to our wonderful neighbors and family that have stepped up and agreed to help out with Abbey while we are here at Children's and while Randy is gone on his trips. Thanks so much for lessening this load for us right now. We owe you all a big thank you. And hey, how 'bout this, let's do a big cook out when we all get home to say thanks for watching Abbey!!!! That's a great idea...Hhhhhmmmm, I can already taste the burgers and dogs off the grill!!!

Wasn't it a beautiful day today?? Grandpa and Grandma M. came for an afternoon visit and it was so nice to have a visit and watch the wind blowing through the trees outside of Connor's window. After they left, I went for a short drive down to Matthew's Beach. I walked around for a while and took in the fresh, clean air and took advantage of a warm evening. How I prayed for Connor durning that walk and asked the Lord to give us another warm day soon that Randy & I could stroll together with Connor in our arms. It is always a reflective time for me when I get to be outdoors. Don't you ever wonder what it must have been like to be present at the moment of creation when God was creating plants, trees, animals, bugs, landscapes and so on. We have the most creative, amazing Heavenly Father. He knew from the beginning of time that His people would need beauty to surround them and that that very beauty would bring them closer to Him. I just think that's delightful that God thought of us in that way and had us in the palm of His hand from the very beginning of the world. Although my mind is skewed with doubts and fears at the current moment regarding Connor and his future, I know that the Lord of all creation sees me, and holds me and provides for my every need. Thank you Lord for your beautiful, spectacular love for me. Thank you for showering me with your daily grace and mercy. How very lost I would be without your guiding hand and loving touch. The wonder of your love is amazing and I am forever changed because of the way you care for me. Thank you for holding Randy and I and Little Bug close to your heart. Cradle us in your grip this evening I pray and give us new strength when we wake up tomorrow.

Goodnight and Lovebug Hugs,
Lori