Sunday, August 20, 2006

New Information...

It is 9:30pm on this Sunday evening and Randy & I just got off the phone with the nurse that is responsible for Connor. He has been desaturating the majority of the evening without being able to come out of it on his own. They suspect that he may be accumulating extra fluid around his lungs and they are preparing for more X-rays at the moment. He had been fighting the breathing tube so the doctor's made the decision to use a paralyzing drug to keep him totally inactive and they have upped his sedation medication as well. He is stable at the time being because he isn't fighting all of the equipment and their plan is to keep him this way at least until mid morning Monday after they make a decision about how to proceed.

Randy & I made the heart-wrenching decision to stay at home this evening to allow ourselves a good nights sleep. We are filled with anguish not to be at Little Bug's bedside, but we realize that our fight may very well just be beginning with our precious son. We have got to find strength and rest. This is the very first time that we will be away from him at night and not just right upstairs at the hospital. At the moment, I don't even know how we will sleep as we are riden with worry and fear. We have tear stained cheeks today as we have spent hours away from Connor, but we are trusting in the Lord as well as the sheer reality of our situation that we need to gain strength. We appreciate all of your prayers and encouragement. We are in desparate need of a fresh wind of hope. As I write these words I must say that we are believing for a miracle, but it feels like we're holding on by a thread. Oh God, give us strength and peace this night. Awaken us with your joy in the morning. Provide a new wave of your power and touch our little boy. Rest upon our hearts now like a gentle dove and give us the precious reassurance that we need to fall asleep.

Lovebug Hugs,
Lori

18 comments:

Anonymous said...

Jesus, Help Randy & Lori find rest tonight. I know they don't even feel they can even sleep away from their son tonight. Lord, intervene and give them unbelievable rest and to wake in the morning with renewed strength to face this journey. Again Lord, we pray for a miracle of the behalf of Connor tonight. Reach down and touch his little body with your healing touch in Jesus name we pray!
Sue & family

Kristine and Abbie said...

May you rest well and with some peace...

Kristine

Anonymous said...

Randy and Lori

It must be so tough to not be at the hospital but you are making a wise choice, gaining your strength for what lies ahead. We pray that the surgery will take place soon and that it will be nothing but success! Lord give Lori and Randy great rest and surround their bedroom with your angels wings. Give Connor healing in his little body tonight so he can continue with his OVERCOMER attitude! We know Lord he is such a fighter and we know that he must be weary so please give him all that he needs to accomplish this journey that you have sent him on.
Love
Tammy

Olga said...

Dear Randy and Lori,

I will hope and pray with you that your brave little boy will weather this obstacle, receive God's healing touch, and grow into a fine young man one day.

I have been writing about a baby much like Connor. She also has down syndrome and a congenital heart defect called Tetralogy of Fallot. My friends and I are helping her parents raise funds for her surgery, so she too, can grow into a fine young lady who will bring love and joy to her family.

Do continue to be brave and never let go of your faith. We have an extraordinary God who is orchestrating everything that is happening in our lives. Keep trusting HIM.

God bless!

Olga

Anonymous said...

Lori & Randy, our prayers and love are with you, We do know some of the very very tough decisions and all the emotions you are both going thru.. We pray that God will contunue to carry you both and little Connor through these days. Remember Connor is in God's hands and He will see you through this time. We are praying for you.
Love Darrell & Kathy Thompson

Sister & Aunt Teresa said...

So sorry all the things that have happened over the last couple day's. I'm sure very exhausting. You are wise to go home & sleep & atleast try to get a decent night's rest.
Connor will have his Guardian Angel with him all night long.....We are praying specifically for all your request too.

Remember...God is the God of all HOPE, LOVE, PEACE, & STRENGTH. cling to him tonite. LOVE YOU ALL!
Teresa

Nicole said...

Lori, My family is praying for yours. I am so sorry you are having to endure the pain of watching your precious Connor be so sick. We will be praying for you non stop until your Little Bug is out of the woods. In Him, Nicole

Debi said...

Lori
I am just reading this it is Monday morning I pray that you did have a rest and peaceful night however I know this is a tough time I just went through 3 weeks of the critical stages with a family member....My heart just goes out to you .....Today is Monday I pray for wisdom with the doctors and there decisions with your precious little Connor....Oh how I pray he had a restful night ....he will need it also for recovery of his surgery.....
May God be with you today and this week...
I am sure he is on our prayer chain since Auntie Maureen and I go to the same church however I will forward some blogg info and get him on MORE....

Bless you Lori ....

Debi

Anonymous said...

Lori and Randy God's word says he will not give us more then we can bear . Hang in there you have allot of people praying . Make sure that you give it ALL to Jesus not just some but give ALL your cares and fears to him .

Anonymous said...

Dear Randy and Lori, I write from Wisconsin and am praying with a language that comes with groans and uttering from my inner being. A language that our Father knows more than us and thankfully knows our inner fears as well. May the Mighty GOD, ALPA AND OMEGA, BEGINNING AND THE END, JEHOVAH JIRAH, JEHOVAH SHALOM, JEHOVA RAPHA, JEHOVA NISSI-uphold you with his arms. With arms outstretched, Shawn Z

Susie - Maggie's Mom said...

Randy & Lori, I pray that you were able to get some rest to prepare yourselves for the day today. I also pray that Little Bug keeps up his fight and that the doctors see the need to do his surgery sooner rather than later. Keeping you all close in my thoughts and prayers.

Tammy and Parker said...

Lori,

My name is Tammy and my little guy is Parker. We have been down a bit of the same road as you have with your precious little one.

I notice that you are in Washington and speak of Primary's. Is that perhaps Primary Children's? I am in Utah.

Please know that we are praying for you and know you will find the strength to see Conner through this and through his surgery.

Thinking of you,

Anonymous said...

Skylars sister Monica

We hope the apsolt (sp) for little Connor.I feel so sorry for Connor that he is so little and he has to go though all this.Do you think you might be able to put up some new pitures so we could see the little bug?That would be great.If ypou don't check sky blog (but you might .I don't know.)My mom put up some recests(sp) for preys for connor.We hope that you guys get the best.I have that white chocolate airplanes you gave us hanging up on my picture wall.So I will never forget you and hope for the best.

Auntie Heather Milliren said...

Dear Randy, Lori and Little Bug,

I am praying for you today. I know that it is difficult for you to be away from Connor right now. But, rest assure that he is in good hands at CH. Thank you for updating Bryan this morning. I will check in later to see if the team has set a date. I imagine that they feel are real sense of urgency to take care of Connor's heart. Be strong and courageous!

I love you,

Auntie Heather

P.S. Please send some prayers for my mom's surgery this afternoon. Thank you!

Katrina said...

Keeping sweet Conner in our thoughts and prayers. I came to your blog from a link on the Trisomy21online.com site. Our son Brant also has Down syndrome and had a successful ASD/VSD repair over 2 years ago. We will remember Conner as well as his doctors in our prayers that he will become healthy again.

Katrina

Anonymous said...

Dear Randy and Lori,

It's been awhile since I've written, but I wanted you to know that I'm still here praying for you
and precious little Connor. What a
roller coaster ride you have been on! I'm praying for God's intervention and I know He will see
you through this journey. How I admire your never ending trust and faith in our precious Lord. I can't even imagine how difficult this has been for you...we love you all very much and pray for Connors soon and quick recovery!

Susanne (Dale & Boys)

izabell and wyndi said...

lori
i am sorry we did not see you before we left. we will pray for connor. miracles happen, the doctors at children are helped by the hand of god, i belive this, i have izabell still beacuse of childrens staff and a millon prayers. we will pray,worry and rejoce with you and your family. He has a strong brave family looking out for him.he knows how goood it feels to be in your loving arms, he will fight for them.call if you need anything. if you need a place to sleep away from the hospital but still close (Shoreline 15-20min max) by we have a guest room, and you are always welcome.call anytime
wyndi steven and izabell

Anonymous said...

Conner, Randy and Lori,
You are so special and I just wanted to let you know that in Lynden we are praying for you.
May God give you all the strength you all need to make today a victorious day. Love in Christ Marcia (McCay) Reyna