Bronchoscopy Today!!!!

Today at 1:30pm I will send Connor into the operating room once again. He will have his bronchoscopy study at 1:30pm. Please pray that they would find a sturdy airway and no evidence of obstruction. We so desparately want to spare Connor of having a Trach.

Yesterday morning was great for Connor. He was snuggled by our sweet friends and honorary aunties, Shawn and Racquel. Thanks for your visit ladies, you were joy to my soul. After that, Connor just didn't seem to be acting like himself. A couple of hours later he worked himself up into quite a frenzy. Apparently his tummy was really bothering him because he threw up like there was no tomorrow. Remember, he's not supposed to be able to do that. When the doctor came in to discuss it, she said we need to do a G-tube study to see if his Nissen procedure is still working. Aaaauuuugggghhhhh!!!!!!!!!!!!!!!!!!!!!!! What more????????????

Earlier in the day the nutritionalist and dietician came and talked to me about Connor's growth, or should I say lack there of. They did a study on his poop last week (sorry for graphics....) and concluded that he's not obsorbing the good stuff, the fats....he's only obsorbing the fortifier of carbs that they put into the breatmilk. They decided to take him off breastmilk until Friday and just give him a pre digested formula to see if that works. It's all such a guessing game with Little Bug. It was scarry to hear the words, "Connor is failing to thrive!" We've been here 73 days and he's only gained 1 pound 14 ounces. That's just under 2 pounds in over two months. Certainly this is not acceptable. After they took him off breastmilk yesterday, it wasn't but about 4 hours and he was pooping up a storm and he developed a strange rash on his little bum. Now they concluded that it is from the formula, so back to breastmilk we go. What a merry-go-round.

We also enjoyed our visit with Auntie Maureen and cousin Derek yesterday afternoon. Connor was wiped out, but he enjoyed the snuggles. Nurse Cheley was gentle as always and then we had the sweet loving care of another one of our favorites last night. Nurse Genevieve is like an angel. She touches Connor with such love and sweetness, it's actually precious to step back and watch. We will miss her as she is going on a long trip to Ireland. Thanks for being a blessing to us Genevieve. I hope we're not here when you get back, but just in case we are, we can't wait to hear about all your adventures abroad.

Late last night, Connor had another IV problem. His leg IV blew out so they had to do the multiple poke method of finding a new vein and finally after midnight, they got one in his head. He conked out and was completely exhausted after about 1am. Whew, what a day.

Please pray today at 1:30 as Connor goes to the OR. We miss Daddy today as this is the first time I have to send Little Bug into the OR by myself. I will place our hearts underneath his blankets and I know that Herman is already rallying the angel troops to accompany Little Bug into the big white room. I will post later this afternoon with results, and I hope to exclaim the miracle working hand of God on Little Bugs airways.

Lovebug Hugs,
Lori