Thursday, May 11, 2006

Bronchoscopy Today!!!!

Today at 1:30pm I will send Connor into the operating room once again. He will have his bronchoscopy study at 1:30pm. Please pray that they would find a sturdy airway and no evidence of obstruction. We so desparately want to spare Connor of having a Trach.

Yesterday morning was great for Connor. He was snuggled by our sweet friends and honorary aunties, Shawn and Racquel. Thanks for your visit ladies, you were joy to my soul. After that, Connor just didn't seem to be acting like himself. A couple of hours later he worked himself up into quite a frenzy. Apparently his tummy was really bothering him because he threw up like there was no tomorrow. Remember, he's not supposed to be able to do that. When the doctor came in to discuss it, she said we need to do a G-tube study to see if his Nissen procedure is still working. Aaaauuuugggghhhhh!!!!!!!!!!!!!!!!!!!!!!! What more????????????

Earlier in the day the nutritionalist and dietician came and talked to me about Connor's growth, or should I say lack there of. They did a study on his poop last week (sorry for graphics....) and concluded that he's not obsorbing the good stuff, the fats....he's only obsorbing the fortifier of carbs that they put into the breatmilk. They decided to take him off breastmilk until Friday and just give him a pre digested formula to see if that works. It's all such a guessing game with Little Bug. It was scarry to hear the words, "Connor is failing to thrive!" We've been here 73 days and he's only gained 1 pound 14 ounces. That's just under 2 pounds in over two months. Certainly this is not acceptable. After they took him off breastmilk yesterday, it wasn't but about 4 hours and he was pooping up a storm and he developed a strange rash on his little bum. Now they concluded that it is from the formula, so back to breastmilk we go. What a merry-go-round.

We also enjoyed our visit with Auntie Maureen and cousin Derek yesterday afternoon. Connor was wiped out, but he enjoyed the snuggles. Nurse Cheley was gentle as always and then we had the sweet loving care of another one of our favorites last night. Nurse Genevieve is like an angel. She touches Connor with such love and sweetness, it's actually precious to step back and watch. We will miss her as she is going on a long trip to Ireland. Thanks for being a blessing to us Genevieve. I hope we're not here when you get back, but just in case we are, we can't wait to hear about all your adventures abroad.

Late last night, Connor had another IV problem. His leg IV blew out so they had to do the multiple poke method of finding a new vein and finally after midnight, they got one in his head. He conked out and was completely exhausted after about 1am. Whew, what a day.

Please pray today at 1:30 as Connor goes to the OR. We miss Daddy today as this is the first time I have to send Little Bug into the OR by myself. I will place our hearts underneath his blankets and I know that Herman is already rallying the angel troops to accompany Little Bug into the big white room. I will post later this afternoon with results, and I hope to exclaim the miracle working hand of God on Little Bugs airways.

Lovebug Hugs,
Lori

5 comments:

Brennan Bennett said...

Hi Baby Connor! I seen you on the computer and you look very cute. And Baby Connor, when we are going to visit to California, maybe we can come to you too and see how you are doing. Bye Baby Connor.
Brennan

Heather Bennett said...

Lori,
WOW! You are definitely in my heart today. I will begin praying right now and continue throughout the day. The kids and I will make it a point to stop what we are doing at 4:30 ET and lift Connor to the Lord. Isn't it wonderful to know that when we step out of the room we don't leave our little ones alone. We are leaving them in the hands of the one who created them and loves them even more passionately than we do. Let that be of some comfort to you this afternoon as you wait without Randy by your side. Speaking of "by your side", guess what?! Your creater who loves you even more passionately thatn Randy does is sitting right by your side today. :)

We love you so dearly and you are strong in our thoughts today.

I can't wait to hear how things go.

Connor,
You get some rest and start taking in some of Mama's good fatty stuff. I know, you're just like my kids, they never want the stuff that is REALLY good for them. It's just a kid thing. :) But, if you're going to grow up big and strong like Daddy, you've got to eat EVERYTHING! OK?
I love you so much Little Bug!
Auntie Heather #2

Anonymous said...

Lori: Jesus said "I will never leave you nor forsake you" HE is there with you now when Randy can't be (though I know his heart is there with you) and I know you have so many friends and family holding you up before the Lord today. I pray you will feel the strength of those prayers. We'll keep you in our prayers all day and especially at 1:30 will we cry out to the Lord. We love you JoAnn & Rip

Sister Teresa & Auntie said...

Lord,

We ask that you intervene on Connor's behalf. wrap your loving arms around him during the surgery. Guide the Doctor's hands and give them wisdom in how to procede. Let Lori & Randy feel your presence during the waiting time & give her strength & peace. We ask this in Jesus Name! Amen.

Be assured that we are and will be praying for Connor all day...we will be waiting for the news. We love you all so much. I hope that you can feel all our prayers going up for all three of you today.

We love you, Teresa & family

Auntie Maureen said...

Connor, Lori, and Randy,
HAPPY 4 MONTH BIRTHDAY!!! This, my boy, is not the way you are suppose to celebrate a birthday. Maybe your cousins will have to give you some pointers on how to make a birthday fun. Regardless you have been in our prayers to day and every day. I am waiting for some good news.
Love, Auntie Maureen