Friday, March 24, 2006

One step forward...three steps back!

I'm not excited at all to write this post. After such a great and promising day yesterday, today was a turn in the wrong direction. After leaving him last night at 11:30pm we anticipated a great new day to come, but when we arrived in Connor's room this morning, it was not the case. He struggled most of the night with his breathing and at about 3:00am he ended up back on the c-pap machine and a new addition of an OG tube (oral gastric) to suction his tummy. Because of the OG tube he was severely foaming at the mouth and really looked a fright. They stopped his feeds because of fear of aspiration, and went back to TPN (total pareanatal nutrition) through his IV line. On top of that he developed a skin infection where the opening of the G-tube is in his tummy so they started him on a 7-day round of antibiotics. WOW, what a difference a day makes, huh!!!! We spent a teary, emotional morning and day watching Connor struggle, once again.

Thanks for your support today Mom (R.) and Teresa. It was good to have a shoulder to cry on and a listening ear. The lunch was great. We have lots of left-overs to finish in our fridge in the trailer. Pastor Chris and Lisa also came for a surprise visit. Your encouragement is always refreshing and by the way, the Mamba was super but no substitute for Starburst...HA!! During our lunch we were also suprised to see Greg and Kelly and little Micha!! How we pray that Micha received a good report from his MRI. You are still in our prayers little guy!!!

Connor remains on all of the breathing support at the moment. It looks like our time in ICU will continue until they can get all of this under control. Please continue your prayers for Connor to be a fighter!!!
Lovebug Hugs,
Lori

10 comments:

Anonymous said...

Lori,
We are so sorry to hear this but believe that this hard day will be just a flicker in your memory because of the super great days that will be around the corner. It must be tough and exhausting to see your little guy suffer. Please make sure that you 2 are also taking care of yourselves and that you are able to eat, drink and sleep especially with all the pumping that you are doing. Connor can not afford for his mama to get sick. We will continue to pray for all 3 of you and for a great new day for Connor tomarrow!
Love
Tammy

Emery six said...

Hi Randy and Lori,
That darn roller coaster ride as we experienced ICU parent refer to. You're on top of the world, then you come crashing down. It's that "normal" part of being in ICU that we really don't care. We really know how hard it is, but we pray that it will get better soon. We are here for you, to pray along side of you, to trust in the mercy of the Lord with you.

"But the eyes of the LORD are on those who fear him, on those whose hope is in his unfailing love, to deliver them from death and keep them alive in famine." Psalm 33:18-19

Your hospital buddies,
John and Susan

Cousin Erica!!! said...

Randy Lori and baby Connor
I miss you guys so so much I love you all hope to some down and see you soon I pray for you guys everyday!!
All my love
Cousin Erica!!

Anonymous said...

Randy,Lori & Connor,

You are in our prayers through out the day. We love you and are so sorry you have to endure this season in your life. Hopefully it will pass soon and you will be able to spend more sweet momemts at home with Connor. We have spent many a tearful moment for the 3 of you and know that God does hear the prayers of His people. Try to hold on in the faith He has given you. We will uphold you with the support of our prayers. I am so thankful that you have loving people up there to bring you nutrition, and encouragement. We pray God will bless them for their ministry to you. Please take care of yourselves.


We love you,
Steve, LeeAnn, Steven & Timster

Anonymous said...

I'm glad Connor is doing well. I hope he gets out soon. I know he will. With you 2 as his parents, I'm sure he's a fighter. I can't wait to teach him how to swim in our pool.







Love
:
Timster

Anonymous said...

Good Morning Lori and Randy and Precious Connor,

I just had written to you and I pressed the clicker wrong and I eraced the whole message uffda. I will not give up on learning this thing. You have all been in our prayers and thoughts all through the night we just pray that Connor will have a better day today and that the doctors will have unusal wisdom and guidance from the Lord for everything they will do that it will pass through the Holy Spirit first.We pray 2Chronicles 16:9 for you today:

For the eyes of the Lord move to fro throughout the earth that He may STRONGLY SUPPORT those whose heart is completely His. May you feel His strong support today and may Connor's little body receive healing and we pray that the Holy Spirit breathes breath into him.

Yesterday when I was listening to Pastor Swindoll he shared ho we all need a HOPE TRANSPLANT and he refered to IPeter 5:6-7

Humble yourselves,therefore, under the mighty hand of God, that He may exalt you at the proper time, casting all your anxiety upon Him , BECAUSE HE CARES FOR YOU.

He shared how our cares were like a back pack (remember when you both climbed Mt.Whitney and when you could take off you back packs and how good it felt when you weren't carrying them anymore I'm sure you even said "whew") then Pastor Swindoll said that's what we have to do with our cares cast them off so the Lord can carry them for us. We pray that for you today may the Lord hold you close to His heart.

You know writing this again now and not giving up in my frustration with this computer it's teaching me what it means to be persistent. God is teaching so many lessons love truly pushes us to areas we've never been.

I will try again but not before we tell you how much we love you and always remember Jesus loves you a whole lot more than we could ever think.

Lots of Love Dad and Mom XOXOXOXOXXO (Like Maryalis would say that's hug and kiss abuse :)

The Denessen's said...

Randy & Lori,

As we left the hospital last nite my heart was just heavy. Yesterday was not a good day I know. I just wanted to share this with you. Mom & I left the parking lot to drive up with Randy to the trailer AND what did I see.....A BEAUTIFUL, BRILLIANT Rainbow in the sky. I think it was there to give us all Hope & Faith for a better day and many more to come!!! I was in prayer last night before sleep & I prayed for absolute wisdom for the doctor's to know how to help Connor in just the right time and for him to respond. ALSO prayed for your faith to be lifted by those who have gone on before you in their journey of your very (or close to) the same thing. It does help so much I'm sure when you hear of the kid's who have endured & had victory!!! I pray for VICTORY over our "little bug" and for a VERY BETTER DAY!!
Remember One day at a time.

We Love you & pray always.
Teresa

Emery six said...

Randy and Lori,
My heart goes out to you. John told me Connor was having a hard time. It is so so hard, especially when little Connor has just had some recent progress. We eagerly await news of how your little sweetheart is doing. It's all so scary and we just have to keep turning to the Lord. It is hard to feel so helpless but one thing we can do at these times is keep asking God for his mercy on his littlest lambs. Keep singing to him and talking to him. We are with you.
Susan (and John)

Anonymous said...

Randy & Lori,
we are continually praying for you and your little fighter! We are praying for a much brighter day tomorrow and for God's continued strength during this difficult time.
Love Sue

Anonymous said...

Randy & Lori
Each morning as soon as I get to work I check the blog to see how Connor is doing. This morning it sounded so hopeful and after lunch I checked again and was so sorry to hear your little bug was having such a rough time. That is so hard to see your little one having such a struggle. We pray the roller coaster will soon have more up's than downs and that the doctors will get to the heart of whatever is causing the problem.
We're so glad you have such loving families and such a strong support system of friends to hold you up before the Lord. Your faith is an example to all of us. We love you all so much and pray our Lord will be especially with little Connor.
WE are holding you up continually before the Lord.
Jo Ann & Rip Collins